S3E2: Dr. Ginevra Liptan

blue and purple/pink background with white text - Chronic Sex Podcast | Season 3, Episode 2 | Dr. Ginevra Liptan | Doctor & Fibro Badass

Content note: I briefly mention substance misuse, eating disorders, and abuse – skip 6 minutes in to avoid. Throughout our convo, we discuss suicide, sexism and ableism in healthcare, cannabis use, the opioid crisis, and use some ableist language.

Welcome to April! It was sunny and windy as all get out here in Wisconsin, so here’s to spring.

In this episode, I speak with author, doctor, and fibro friend Dr. Ginevra Liptan. Together, we talk about the pain of fibro, pain management, Frida Kahlo, and how to get Lady Gaga to fund an institute or organization to study fibro – #GagaForFibro?

Links from the episode

color painting of a latinx woman with long dark hair worn down and her spine showing through her naked torso as a long broken column
Kahlo’s The Broken Column (1944)

Wanna support the show?

Here are a few links for that:
Target list
Amazon list
Paypal
Patreon
Ko-fi
Cash app: $chronicsex
Venmo: chronicsex

You can also support the show by buying merch on Zazzle or shopping from one of my affiliates listed on the sidebar.

I’m also booking talks for the rest of the year. Please shoot me a note at kirsten at chronicsex dot org if you wanna book me! The topics I cover are listed here, and I’m always happy to create anything from writing to podcasts.

Transcript

Welcome to the chronic sex podcast! Chronic sex talks about how self love, relationships, sex, and sexuality are all affected by chronic illness and disability. That’s not all though. We’ll also touch on intersectionality, social justice, empathy, current events, and much, much more. Given the range of subject matter, this podcast is not suitable for those under the age of 18 and unless you have headphones in, you probably shouldn’t be listening to us at work. My name’s Kirsten Schultz and I’m your host.

Continue reading “S3E2: Dr. Ginevra Liptan”

Awareness Calendar for April

photo of a field during the day with a white square overlay and black text "Awareness Calendar for April" and "Chronic Sex"

On the first of each month, I post a collection of awareness dates curated from across the internetz. While US-centric, many awareness events are global.

Month:

  • Alcohol
  • Ankylosing Spondylitis
  • Autism
  • Black Women’s History
  • Cesarean Awareness
  • Child Abuse Prevention
  • Deaf History (March 13-April 15)
  • Donate Life
  • Facial Protection
  • Foot Health
  • Humor
  • Irritable Bowel Syndrome (IBS)
  • Financial Literacy
  • Jazz Appreciation
  • Minority Health
  • Occupational Therapy
  • Oral Cancer
  • Parkinson’s
  • Pets!
  • Primary Immunodeficiency
  • Sarcoidosis
  • Sexual Assault
  • Sexually Transmitted Infections (STIs)
  • Sports Eye Safety
  • Stress
  • Women’s Eye Health and Safety

Day/week:

  • National Public Health Week (1-7)
  • RAINN Day of Action (4)
  • World Health Day (7)
  • Oral, Head and Neck Cancer Awareness Week (7-14)
  • Minority Cancer Awareness Week (9-15)
  • Siblings (10)
  • National Youth HIV/AIDS Awareness Day (10)
  • World Parkinson’s Day (11)
  • International Functional Neurological Disease [FND] Awareness Day (13)
  • Healthcare Decisions Day (16)
  • Voice Day (16)
  • World Hemophilia Day (17)
  • Transplant Nurses Day (17)
  • Day of Silence (21)
  • National Infertility Awareness Week (21-27)
  • World Primary Immunodeficiency Week (22-29)
  • World Immunization Week (23-29)
  • World Meningitis Day (24)
  • World Malaria Day (25)
  • World Penguin Day! (25)
  • MS Awareness Week (25)
  • National Infant Immunization Week (26-May 3)

Does planning lead to better sex?

Did you know planning for sex leads to a more fulfilling sex life?

Well, that’s kind of true.

According to the Guardian, “Those with personality traits falling under the conscientious umbrella i.e. people who are efficient, achievement-oriented, disciplined and dependable, are more likely to be sexually satisfied than those who pride themselves on a devil-may-care approach to intimacy.”

This study was conducted on mostly hetero couples and, probably, mostly cis peeps. It was not noted if any dealt with chronic illnesses, either, and that’s important.

I plan everything or, at least, that’s what my calendar would make it look like. Unfortunately, the reality is quite different.

Sure, I plan for deadlines and appointments. I have to or, often, I might not remember them. Over the last few years, I’ve let go of the perfectionist organization I’ve kept up since… like grade school. On top of that, many of my days are spent trying to make it to tomorrow. As much as I talk about sex, there is a certain disregard for it if my pain levels are high.

Well, if the info isn’t as straightforward as news articles are making it seem, what should we take away from this study?

Honestly, if your takeaway is that it’s okay to plan for sex? That’s okay, especially if it strikes up important conversations between you and your partners.

We just have to keep in mind that these kinds of studies aren’t geared towards queer, trans, and disabled/chronically ill people… at least, not quite yet.

Posted in sex

You Are Not An Island: How To Maintain Relationships With Illness

on left, teal overlay with white text - You Are Not An Island: How To Maintain Relationships With Illness - on right, B&W photo of one person sitting on a high top with another person in close with a hand on the first person's leg

Relationships can be really hard to maintain, especially when health issues are at play. It can feel like our illness is a third partner no one consented to – one that has uncontrolled jealousy and attachment issues.

It’s easy to feel like we have to tackle health issues alone, especially if we had them before entering into a relationship.”This is my burden,” we think, “not theirs.”

When we do that, though, it makes it easy to become overwhelmed. We’ve taken on too much by trying to exist inside of a controlled bubble. At the same time, we try to be superheroes and accomplish everything on our lists.

Communication breaks down as we labor away in the land of denial.

Taking the stance that our health is our problem alone leaves our partners out. They worry about and care for us in incredibly deep ways, and shutting them out leads to a lot of hurt feelings. It also removes their autonomy, too.

We’re so concerned that they’ll reject us that we don’t give them the chance to be with us, wounds and all.

Relationships are about making it through the rough stuff as a team. You can’t pitch, cover the infield, and be in the outfield at the same time.

So, what do we do?

Take a minute today to let your partner(s) know how much you care about them and the support they give. Tell them honestly how you’re feeling and doing. Opening up and sharing those very vulnerable things leads to an unparalleled level of emotional intimacy, trust, and love.

Once we do that, our partners can help us with our health issues – and, chances are, that’s something they’ll give anything to do.

It becomes easier to give feedback when we’re honest about our feelings, too.

Having a scheduled date night can help bring about conversations around feelings and give structure to create a feedback loop. It’s always best to talk about these things without sexual tension, so have conversations about feedback outside of the bedroom. And, you know, while relatively sober. I know it can be hard to share feels honestly, which is why I say relatively.

And, by that, I also mean sober as you define it. If you take opioids or mj for pain but still feel comfortable having big conversations or giving consent, go for it.

There is no shame in needing more help or moving the balance of a partnership from 50/50 to 70/30 with more on your partner’s plate. It’s important to remember all the ways our relationships flux and that things won’t always be even.

It is important to make sure that you and your partner(s) both always feel supported. Support can come from within the relationship or outside of it. People you’re close to – other partners, family, and friends – play pivotal roles in how supported we feel.

Most of all, it’s important to ask for help when you need it. Sometimes when we don’t, we can take frustrations out on loved ones. And it feels really bad for everyone, including you.

I am rubbish at getting support I need. I don’t say I need help until it’s too late. And that places unneeded stress on my intimate relationships as well as close friendships.

In learning how to help others, I’m realizing how far I have to go, too. We all have so much work to do, so much we can strive to work on. Being real and vulnerable means admitting that, even when it’s terrifying.

Maintaining relationships takes work. It’s not going to be easy or all rainbows and smiles. But it is important, and the work pays off.

Must-have sextech, toys and accessories for people with disabilities

In the field of sexuality, it’s easy to get caught up in the glitz and glamor of new sex toys. New features advance the way we think about and express sexuality. Almost weekly, new lists of amazing sex toys to try come out.

Often, though, people with disabilities are left behind.

Disability is as diverse as any other category of existence. While that diversity is beautiful, it can also make finding the right sex toys for our bodies difficult. What one person swears by might not be accessible or helpful for someone else.

Click here to read more

S3E1: Dr. Lee Phillips

Yesterday, I spoke with Dr. Lee Phillips. He’s a licensed social worker and sex therapist currently working on a book called ‘Sex and Love When You Are Sick’ (which I am SO EXCITED ABOUT).

You can keep up with Dr. Phillips below:
Site: www.drleephillips.com
IG: instagram.com/drleephillips
FB: facebook.com/drleephillips

If you heard the first part of the episode and want to help me out a bit, here are a few links for that:
Target list
Amazon list
Paypal
Patreon
Ko-fi
Cash app: $chronicsex
Venmo: chronicsex

You can also support the show by buying merch on Zazzle or shopping from one of my affiliates listed on the sidebar.

I’m also booking talks for the rest of the year. Please shoot me a note at kirsten at chronicsex dot org if you wanna book me! The topics I cover are listed here, and I’m always happy to create anything from writing to podcasts.

Transcript

Welcome to the chronic sex podcast! Chronic sex talks about how self love, relationships, sex, and sexuality are all affected by chronic illness and disability. That’s not all though. We’ll also touch on intersectionality, social justice, empathy, current events, and much, much more. Given the range of subject matter, this podcast is not suitable for those under the age of 18 and unless you have headphones in, you probably shouldn’t be listening to us at work. My name’s Kirsten Schultz and I’m your host.

Continue reading “S3E1: Dr. Lee Phillips”

animation of a work desk with a cup of coffee in the lower left corner and a laptop in the upper right corner - in the middle is a stack of papers with black text: "Awareness Calendar for March" and "Chronic Sex"

Awareness Calendar for March

On the first of each month, I post a collection of awareness dates curated from across the internetz. While US-centric, many awareness events are global.

Month:

  • Black Women In Jazz & The Arts
  • Bleeding Disorders
  • Brain Injury
  • Colorectal Cancer
  • Developmental Disabilities
  • Deep Vein Thrombosis (DVT)
  • Endometriosis
  • Gender Equality
  • Hemophilia
  • Kidney
  • Multiple Sclerosis
  • Nutrition
  • Self-harm
  • Sleep
  • Traumatic Brain Injury
  • Trisomy

Day/week:

  • Self-Injury Awareness Day (1)
  • Baby Sleep Day (1)
  • Disability Day of Mourning (1)
  • International Wheelchair Day (1)
  • National Aplastic Anemia and MDS Awareness Week (1-6)
  • World Hearing Day (3)
  • Bone Marrow Failure Awareness Week (3-9)
  • National Sleep Awareness Week (3-10)
  • Endometriosis Awareness Week (3-9)
  • International Childhood Cancer Awareness Day (7)
  • International Women’s Day (8)
  • National Women and Girls HIV/AIDS Awareness Day (10)
  • Patient Safety Awareness Week (10-16)
  • World Glaucoma Week (10-16)
  • Brain Awareness Week (11-17)
  • World Kidney Day (14)
  • World Sleep Day (15)
  • World Oral Health Day (20)
  • National Native American HIV/AIDS Awareness Day (20)
  • World Down Syndrome Day (21)
  • International Day for the Elimination of Racial Discrimination (21)
  • American Diabetes Association Alert Day (21)
  • World Water Day (22)
  • World Tuberculosis Day (24)
  • LGBT Health Awareness Week (25-29)
  • American Diabetes Alert Day (26)
  • Purple Day for Epilepsy Awareness (26)
  • National Doctor’s Day (30)
  • World Bipolar Day (30)

Why I’m Leaving Kinkly

Content note: abuse, consent violations, sexual violence, Charlie Sheen

photo on right of a person standing in the sand and only visible from legs down; on right, orange background with pink text: Why I'm leaving kinkly

The following is an email I sent to Tara Struyk of Kinkly on November 9, 2018. I never received a response. Instead of waiting or continuing to send follow-up emails, I’ve asked today that all of my information be taken off of Kinkly. Time will tell if that truly happens.

Note that I mention phone calls aren’t always accessible to me and that’s why I sent this email in response to Tara reaching out. Choosing to ignore it is both an act of ableism and disregard for others. It’s just another nail in the Kinkly coffin – and, to be honest, a great way to show how much the general sexuality community seems to not give two fucks about any of this.

I’m incredibly disappointed, but it is what it is. You can’t help fix and improve things when people refuse to hear about the harm they’re doing.

Without further ado, here’s why I’m leaving Kinkly and removing their info from each of my sites:

I was disappointed to learn just how Kinkly refused to respond to issues with LELO in the past. I understand that they likely bring in a lot of income for the site. However, there are things more important than money, especially in the sex ed world.

I’ve opted to write this email to you versus having a phone call. Phone conversations are not accessible to me much of the time and, with my conditions affecting my ability to talk (or even have a voice) and the fact that I’m currently traveling, emailing this to you was a better choice all-around.

There are some major problems with LELO that I’d like to highlight. From what I understand, you’ve been given a lot of this information before. I hope that you read this with an open mind, though, and really take a look at what kind of reputation you want Kinkly to have – and whether it’s worth a connection with a company like LELO.

screenshot showing LELO Hex condoms in the Kinkly store

HEX condoms break super easily

Due to their unique structure, though, people aren’t seeing these breaks – especially since the HEX doesn’t shatter like a normal condom. While the idea behind this – that people might benefit from some protection versus no protection – isn’t inherently bad, it assumes that someone would have sex despite a broken condom. That’s not true, especially in 2018. Young people are working better on convos around consent and risk-aware sex than ever before. That also includes, oh, taking a minute to put on a new condom or changing up the planned sexual activity.

The broken HEX, though, means unplanned pregnancies and exposure to STIs are a constant with this brand. Pair that with misogynistic messages on the condoms themselves, and it’s not a good look. Multiple sex educators like Lorax, Sarah, and others have shared just how dangerous this product is.

With maternal death rates in birth rising, especially in the United States, even an unplanned pregnancy threatens lives. Between that and virulent, virtually untreatable strains of STIs moving around, it gets even worse. I’m not sure that I’d want any association to products that put people’s lives at risk, and I’m not so sure why Kinkly is okay with that as a brand.

The hiring of Charlie Sheen

It’s well known that Sheen has a history of being abusive, especially towards women. He’s very lucky he hasn’t succeeded in murdering – and he has tried. Just a few years ago, he cited sex workers as the reason he caught HIV as opposed to taking personal responsibility. That doesn’t even get into the multiple times he’s beaten or threatened women throughout his long career of being the bad-boy-gone-badder. Sex educators around the world have spoken out against his inclusion with LELO as well as the tactless messaging LELO brings by pulling in a man who hadn’t even come to terms with his own diagnosis yet in 2016.

Of course, LELO says they don’t endorse his past and that Sheen does ‘good work.’ Those kinds of claims are the ones that have protected so many abusers before the #MeToo Movement took hold – and it’s not okay. Continuing to support LELO with Sheen involved especially is a punch in the gut to the many survivors browsing your site.

Lack of accountability

Numerous sex educators have called LELO out on 1) HEX condoms, 2) poor and ineffective toy design, and 3) hiring Sheen. They refuse to engage in real conversations about these issues, either publicly or privately. Companies that send ‘jokes’ about STIs or promote shaming people because of their status are not the kinds of people we should be uplifting.

Insiders have even shared the following:

“I think the thing that upsets me the most is that Lelo – or at least the individual(s) at Lelo that are in charge of creating the most recent rounds of campaigns – simply don’t care. I don’t say that as a ‘they obviously don’t care as they’d be backtracking if they did’. I say that as someone who is acquainted with at least one individual who orchestrates these decisions, as far back as the Pino shitstorm. I watched their personal Twitter account and their interactions with their peers who were asking them WTF they were thinking. They were proud of it. They *are* proud of their Hex work, and have made that abundantly clear. They. Don’t. Care. Publicity is publicity to them – negative doesn’t matter. They referred to sex bloggers and educators who were rightfully questioning their decisions as ‘whiney SJWs’. Our opinions mean zero to them – and in fact, the more we tweet, the more they can say they’re the hottest topics of conversation. They feel they are too big to fall, too trenched in the industry to lose out. The more attention, the better even if it’s folks throwing out their Lelo toys in mass droves and swearing off never working with them again.”

Education-based sex toy shops like Sugar, Vibrant, and Smitten Kitten all refuse to carry LELO products due to all of the above. Even the Center for Sexual Pleasure and Health – a space that could use the potential money – tossed them out due to ethical concerns. When Kinkly is a site building a brand off of sex education, it’s important to find where you fall on that line – are you willing to sacrifice the health and satisfaction of your customers in order to make extra money? If so, I’m sad to say that you might as well remove all of the education components of your site.

Speaking of accountability…

I think it’s disappointing that you refuse to answer questions on Twitter. A few months ago, it took thousands of people chiming in on your very white & cishet sex educator post – including problematic people like Dan Savage who make transphobic, biphobic, ableist, and racist comments consistently – to get any change with that. At that point, several of us were ready to ask to be removed from the sex bloggers directory – not because of handling things as a toddler might when upset they weren’t chosen, but because Kinkly is supposed to be about sex education. It can’t be if you’re so concerned with maintaining the status quo that you’re not lifting up more marginalized voices.

It’s taken years to revamp your bloggers list and be transparent about the ways choices are made around it. I have to wonder what the point is in creating a top 100 sex bloggers list if you refuse to listen to concerns we bring up – or if you use it as a shield to refuse to handle criticism in a transparent space. Is it to force us into an odd space where we have to choose between getting traffic from your site and maintaining our ethics? I think we’ve seen how that’s worked out in the last two years.

Kinkly is going to have to change – if due to anything in particular, then because of the social shifts from misogynistic names for things to empowering discussions on consent and sexuality. More educators need to be hired for your site, not just for show but to actually help run it. Social media managers who are also sex educators, for instance, exist in droves. This is especially true among marginalized communities Kinkly consistently overlooks.

I’ve been happy to get named a superhero in the past. I think Kinkly can provide better content – and content that isn’t rooted in the issues many of us are working to change (e.g., misogyny, unnecessary labeling of genders when toys have no gender, etc.). For instance, you need to list ingredients on everything you sell – from lube to toys. This is for several reasons, including accessibility and keeping people safe. Many people have allergies and need to know what’s in the products they’re purchasing. Not listing ingredients could lead to someone going into anaphylactic shock, and I sure wouldn’t want that to happen to anyone.

What now?

People did not know that LELO was putting them at risk through their HEX condom or supporting abusers. Even if you believe Twitter is not a medium for a ‘respectful’ conversation [which was a note in Tara’s initial email to me], I would say that it does help inform people of issues like these to watch out for.

I believe Kinkly is at a crossroads. It can continue down the path of promoting unsafe condoms like the HEX, supporting abusers via LELO and Charlie Sheen, and putting out more white sex educator lists… or you can actively choose to make a change for the better. In my honest opinion, I believe you can make that change. It won’t be easy, sure, but it’s a worthwhile one to make. That’s especially true in 2018, as more companies navigate making changes for the better.

I would like to get a response from you about these issues and to know why you’re still working with LELO. Those of us on the sex bloggers superheroes list – especially those of us who point people in your direction – deserve to know that much.

This is another addition to the shitlist I never should have had to make if they actually value sex bloggers and educators as much as they say they do.

C’est la vie.

Awareness Calendar for February

black background with left-sided red text "Awareness Calendar for February" and white text under that "Chronic Sex" - to the right is a photo of green world with a heart cut out with red dots above and below it

Month:

  • Age-Related Macular Degeneration
  • Black History
  • Boost Self-Esteem
  • Children’s Dental Health
  • Heart
  • Low Vision
  • Marfan Syndrome
  • Prenatal Infection Prevention
  • Rare Disease
  • Recreational Therapy
  • Teen Dating Violence
  • Turner Syndrome
  • Wise Health Care Consumer

Day/week:

  • African Heritage and Health Week (first week of February)
  • Wear Red for Women’s Heart Health Day (1)
  • Burn Awareness Week (3-9)
  • World Cancer Day (4)
  • Congenital Heart Defect Awareness Week (7-14)
  • Pizza Day! (9)
  • Cardiac Rehabilitation Week (10-16)
  • International Epilepsy Day (11)
  • Duchenne Muscular Dystrophy Awareness Week (13-19)
  • Congenital Heart Defect Awareness Day (14)
  • National Donor Day (14)
  • National Condom Day (14)
  • National Condom Week (14-21)
  • Random Acts of Kindness Day (17)
  • National Heart Valve Disease Awareness Day (22)
  • World Encephalitis Day (22)
  • Eating Disorder Awareness Week (25-Mar 3)
  • Rare Disease Day (28)

Getting Tested for STIs

This post is sponsored by STDCheck. All content is mine, per usual.

'getting tested for STIs' against a floral blue abstract background

We’ve talked in the past about some basic STI facts, but let’s dig in a little deeper.

It’s worth reiterating that STIs aren’t always symptomatic. That means that you might not be able to tell if you or someone else is dealing with an infection. The only ways to be sure are to either abstain from all interpersonal activity or get tested.

Many STIs are bacterial and curable with antibiotics… well, except the super strains. For those that are viral, there are medications to help make day-to-day life more manageable.

Also, hey, there are plenty of people who have robust sex lives despite viral STIs. Don’t think that it’ll ruin your future.

Alright, let’s dig in!

Continue reading “Getting Tested for STIs”