Black Friday Sales

starry sky with white and yellow text "Black Friday Sales" and "Chronic Sex"

Step away from the pumpkin pie, pals. I have exciting news about some great sales going on!

Peepshow Toys

From today thru Monday the 27th, you can save big bucks off gear from Peepshow Toys!

You can save 10% off orders of $5 or more, 15% off $75 and up, 20% off $125 and more, or 25% off order of $200 and up. Plus there are some great blowout sales on the following: Swan Squeeze, Swan Hug, b-vibe Triplet, b-vibe Novice, Femmefunn Ultra Bullet, L’amourose Rosa, Womanizer Pro40, and L’amourose Prism V.

It’s an amazing collection of deals!

The coolest part about this is that you don’t have to enter any coupon codes! The badass savings are immediately applied to your account.

Click here to check out the deals and here to look at these blowout specials.

Vibrant

You can save 25% on their Black Friday collection (which includes over 200 items!) using code BLACKFRIDAY17. Hurry, though – this sale ends at 11:59 PM MT on Sunday the 26th.

Come As You Are

They aren’t an affiliate of mine… yet, but Come As You Are is one of my favorite places. The people who work there are amazing and kind, making their customer service second to none. Right now, their sale allows you to snag 20% off any non-book/DVD purchase with the code TAKETWENTY. THEN, as if that wasn’t enough, you also get a 15% coupon for January and free delivery if you’re in Canda.

Sale ends Monday night, so get shopping!

Oska Pulse

photo of a white femme reaching into a kitchen cabinet while a man sits in the background; the femme has on a strap holding the Oska Pulse in place on her back

This is a little different than what I normally share. On my other site, Not Standing Still’s Disease, I have an affiliate I love called Oska Pulse. Check out my review of their pain-relieving device here.

If you’d like to snag a super cool and helpful device, you can snag the Pulse for $100 less. Hurry, though, because the sale ends at 11:59 PM Pacific Time. Click here to check out the Pulse. Make sure to use the code NSSD to help them know your sale is from me!

Don’t forget the SheVibe sale going on as well!

Ready to Jump Back Into Dating? Here’s What You Need to Know

black and white photo of two people from the back walking together on a rainy day - one of them has an umbrella - teal oval with white text "Ready to Jump Back Into Dating? Here's What You Need to Know" and "Chronic Sex"

Look, dating is hard. I’ve been out of the game for a decade. I know everything has changed since I was galavanting around in cars with random people.

I was not a safe teen.

I recently joined a dating app to play with things a bit. It’s so much different than before!

When you’re ready to start dating, it’s important that you don’t let the changing culture impact your decision to date. Never shy away from pursuing relationships simply because you aren’t quite sure what’s popular, common, or trendy. There are always ways to learn and study modern dating before taking the leap.

If you’re ready to start dating, there are a couple of things you need to know.

Phone Calls Aren’t A Thing

People don’t call each other anymore. Like, almost ever.

Part of it is a millennial thing I’m sure, but it’s not just us! Most people don’t want to answer the phone, especially when driving or at work. Many people – like me – simply don’t feel comfortable talking on the phone that much.

I don’t even call to order pizza. It’s definitely not you.

Don’t be upset if someone doesn’t want to talk on the phone with you. There are so many other ways to communicate, such as emailing, chatting, or even spending more time together IRL. This is an excellent excuse to meet up for brief coffee dates and other lower energy activities, too. Having coffee together will give you a chance to talk and spend time together, but won’t take up the entire evening.

It’s always important for me to be home at a certain time for meds. Coffee dates make that possible.

Get Comfortable Texting

I’m constantly on my phone. Let’s be real – when you have a chronic illness or a disability, using your phone is often a lot easier than whipping out your laptop or sitting at your computer. If you’re anything like me, you’re already a pro at texting and more.

If you don’t spend a lot of time texting, prepare yourself. You might need to be able to make plans completely via text.

When texting, it’s important to be consistent in the style you use. If you’re going to use early 2000s era text speech (“U R 2 cute”), make sure that the person or people on the other end are okay with that. The best thing to do is text like you type – complete-ish sentences with punctuation. Don’t send huge, lengthy text messages when something short, brief, and to-the-point will suffice.

Talk with potential partners about how they want to communicate. There are a lot of messaging apps and systems people might use over texting, like Whatsapp.

If texting creates an accessibility issue for you, be upfront in your online dating profile.

Use Apps!

Finally, make sure you start getting comfortable with dating apps – and which ones fit the end goal you’re looking for. Tinder might be great for hooking up, but isn’t the best for long-term stuff. Most people use apps or websites, such as Badults, to find and meet new people. Again, be clear about what you’re looking for – friends, hookups, or longer-term relationships – when evaluating sites. It’s always a good idea to clarify that in your profile as well.

Dating apps enable you to meet a wide range of people very quickly. If you want to try long-distance dating, you can find someone far away to spend time getting to know. Sometimes that can be a great stepping stone, too, if you’re not ready to go on dates. If dates are what you’re looking for, apps can be the ideal way to find someone who is in your area and available to meet up with quickly.

Most apps let you connect instantly with people who share your same interests, whether that’s music, reading, or dancing. You can look for people who match what you’re searching for and start talking with whomever catches your fancy. You might not be able to tick every box, but you can certainly find someone who likes dogs, enjoys reading, won’t be a jerk about health issues (relatively speaking at least), and isn’t your parents’ age.

Bottom Line

Make sure you head into dating with realistic expectations, especially with health issues. There are a lot of people who are more selfish and unable to commit to us when we might be a little more complicated than the average bear.

You might not find a partner right away, especially if you’re looking for that final relationship. You can meet a lot of interesting, exciting people who have the same interests as you. Finding someone to date can be a fun, exciting experience, so make sure you have reasonable expectations and a great attitude. Chances are you’ll find someone interesting and you’ll be able to get to know them in a fun, casual setting.

This is a sponsored post.

I Told A #MeToo Story – And Lost Friends

a photo of a person silhouetted in black against a colorful waterfall backdrop with sunrise/sunset coloring; black text in a black outlined box "I Told A #MeToo Story - And Lost Friends" at top middle and grey text at bottom middle "Chronic Sex"

TW sexual harassment, victim blaming, #MeToo

Back in February, I started to publicly discuss a sexual predator within patient communities [initials AB]. I’ve brought it up again recently but, sadly, have wound up feeling less supported. I’m not a celebrity, nor do I claim to be, but it seems odd to have people continue to question sexual harassment in the era of #MeToo.

The Beginning

This whole situation started when this man made questionable comments of a ‘playful’ nature that escalated over time. The first time I was on the receiving end of one of these comments, I actually responded very negatively. He responded and said something about how this was just how he interacted with people.

Against my better judgment, I let it go. Part of that was his involvement with other prominent patients and patient organizations. None of those connections should have pushed me to do differently than my gut suggested.

Over the years, this continued and got worse. Incidents took place between this man and other women – especially young women, like those in high school – for years. The fact that this person is in his 40’s wasn’t, apparently, a deterrent to his actions. Most of this was on social media but wasn’t limited to that. He has harassed and cornered young women at conferences and events. He’s sent text and other messages to patients, asking how he can get into bed with them. This man has removed many of the inflammatory posts from his site where he dismisses words like cisgender as slurs, uses MRA language, and labels those of us who fight for actual justice negatively as “Kirstens” (I shit you not). Other patients in the past have tried to step in and help him understand what is and isn’t okay. When he turned on them or continued his actions in the face of their help, they ultimately abandoned that task.

As I’ve talked about before, I believe that we need more male voices within patient spaces. Even further, we need more voices around queer, trans, and non-white experiences. So why are we allowing people within the first category to make things uncomfortable and painful – especially while excluding those in the latter? I just don’t know.

Speaking Out

It’s something that took me a long time feeling comfortable discussing, even among friends. This man would attack me, telling me to get over my PTSD in the later years of our ‘friendship,’ and other patients – people I trusted – labeled me as hateful for my rebuttals. He was barred and then reinvited to a medical conference at a prominent university on the west coast because of his relationship with the head staff at this conference.

When I began talking, mutual friends would entertain the idea that this happened and claim to support me and others. Still, they would and do maintain an active friendship with this person – even after telling me they didn’t.

It is beyond frustrating to see, especially when fellow patients echoed similar situations and concerns. It tells me a lot about what other people think of those of us who have spoken out about this man.

If I’m completely honest, it still feels that he was sided with more often than those of us speaking out.

Something I wrote in February that continues to ring true today, especially in light of the MeToo movement:

People who call these issues out aren’t trying to stage a witch hunt [sound familiar?]. That’s not what I’m after. I’m not vindictive or hateful on that level and, by golly, I have enough going on with my health and my things I’m running and doing that I don’t need the drama. None of us do.

As a society — whether as a whole or as patient groups — we cannot make excuses for sexism or sexual harassment. We must call these issues out. Just like with ableism we experience at the hands of people who don’t understand, we have to call out this behavior so that it can be corrected. Ignoring it as a courtesy only allows it to get worse and for more people to be violated.

And again, just like with our illnesses, sharing our stories helps people feel less alone. When I’ve shared my experiences with this person and experiences I know of with people, they have felt redeemed and like their gut reactions to comments or questions have been validated.

#MeToo (unless it upsets someone)

When people began to share their #MeToo stories, I took initiative in posting about this person. I used his name publicly on social media. This was met with a variety of responses from shock to shared experience and more. Unfortunately, it wasn’t long until statements dripping with victim-blaming mentality started showing up.

As a sex educator, it disturbed me greatly to see these comments from people I considered friends. I cried and screamed because I didn’t grasp how someone I trusted – someone who even shared some uncomfortable experiences with this man – could ask questions of me and others like did we ask him to stop.

I couldn’t let these kinds of comments go unchecked. No one’s story about sexual harassment should be policed. A person should be believed, regardless of how much they “fought back” against someone. No one should be met with victim-blaming statements as they speak out about sexual harassment or more.

I spoke out. Calling bullshit, I shared how these questions were inappropriate and harmful – and that, yes, he had been asked to stop several times. It was odd, too, to see someone who claimed to send this man’s messages to spam in order to avoid dealing with them then say that wasn’t the truth. I pointed out the hypocrisy in these questions and how harmful they were.

Could I have handled it better? Absolutely. I could’ve taken the exchange to a private message – though, it should’ve started that way as well. Since I didn’t start it, I don’t feel too much pain over it – especially when victims from various walks of life messaged me about why victim-blaming comments were being made.

People who know me know that I speak my mind – and know that my history of abuse combined with chronic pain is why. I’ve been nothing but forthcoming on how holding in emotions causes me physical and emotional pain. Despite that, I tried for a few months to ignore my gut (yes, again) and continue relationships with people who want everyone to just get along.

It’s clear now that I can’t.

TBH Losing Friends Is Okay

I lost several friends during this exchange because of speaking out and setting boundaries. I received an email a few weeks later from one person trying to explain that this was the final straw in a number of things they disliked. While they think my voice needs to be heard, they said, they find me to be a little “too much.” I talk about being queer which apparently feels exclusionary to people who aren’t.

That frankly is bullshit.

Within the next few days? The victim blamer and the excluded person both were joking with the sexual harasser all started talking together on social media.

I used to find comfort in the arthritis community. Now? I try to avoid it whenever I can, frankly. We can’t all get along, but it’s upsetting to see people who want that abandon victims for perpetrators. It’s nauseating as fuck.

I’ll be honest, too – it hurts to know that old friends and this creepy dude are the ones who will hold me back from being able to attend conferences or take part in events. I won’t go or won’t apply because I know there will be awkward exchanges. Even when I do apply, their influence may guide people in deciding I shouldn’t be there. Hell, this asshole and his defenders ruined that medical conference for me, something that I was so fucking excited about. I shouldn’t have expected much given how this university handled Brock Turner, but JFC.

Thankfully, after this exchange went down, I do feel better. My pain has gone down in huge amounts. Emotionally, I know that I’ve spoken my truth to the best of my ability. Physically, my pain related to holding in emotions is no longer there. I’m no longer dealing with emotional potatoes.

When combined with other self-care methods, my daily overall pain has gone from sitting at 6/10 to 3/10 (though it went back up a few weeks after I wrote this because winter is a thing).

My social media accounts have gone back to what they always should be – a way for me to speak to the world. I no longer sit worrying about how others are perceiving what I’m saying. Between that and the below tweet, I’m back to feeling much better about why I do what I do.

You can share things with others – illnesses, life experiences, etc – but not really get along with them. The people you share XYZ with and those you feel are your friends don’t always overlap – sometimes they’re a Venn diagram. That doesn’t mean you aren’t acquaintances – we just can’t all be friends.

I see friends as people who hold each other accountable for these kinds of comments. Sometimes, that’s not what others think friendship is.

And that’s okay.

Sometimes all you can do is step out and bask in the sunshine of your truth.

photo on Ocean Beach looking out on the pier; the water nearby is so shiny that it's reflecting the fluffy clouds from above

Have you encountered a similar situation? Rooted in Rights is looking for your story. Click here to learn more.

Louis CK Sets An Example?

photo of a clock on the wall with pink text: "Louis CK Sets An Example?"

TW: discussions of sexual assault, harassment, rape, pedosadism, abuse, the fucking patriarchy

As I start writing this, I’m feeling rather… odd. My best friend from college and I are texting about Louis CK’s apology in the New York Times.

In case you’ve been living under a rock or low on energy, stories recently came out about his sexual misconduct. There are several other men who have recently been shown to be serial sexual predators in one way or another. Before getting into Louis’ apology, let’s explore the other most recent high-profile apology – Kevin Spacey.

Kevin Spacey

I had some weird initial feelings about this. I used to like Spacey’s work. When I read what had happened, though, it became clear to me that this was the truth – and a horrifying one at that. I’ve since tossed anything and everything I have with him in it.

on left, photo of a white appearing person with an angular haircut, heavy eye makeup, and wearing a white top; on right, a blue box with light blue quotation mark, white text "There is only one you for all time" - yellow text "fearlessly be yourself" and at bottom middle white text "Anthony Rapp"

Anthony Rapp is one of the most talented actors I’ve ever seen. What he’s most famous for right now is being on the newest Star Trek show. However, he’s been acting since before he hit double digits. He is highly respected due to his Broadway cred, especially having been a part of the OBC of Rent.

Rapp’s conversation with Buzzfeed where he shares a scary underage interaction with Spacey is incredibly raw. As a survivor myself, I absolutely understand the concerns he shares in the piece as well as the empowering feeling many of us have since more and more stories of famous abusers have come out. While we all obviously wish this wasn’t the case, it feels like progress is happening – like we are finally ripping apart some of the privilege white men hold, especially in the entertainment industry. While not the focus of the piece, Rapp shares some signs of PTSD – well, at least signs that I experience. I won’t armchair diagnose, but simply say this is so familiar – and so common – for survivors.

Spacey’s response… There is so much wrong with his statement. I don’t even know where to begin. The victim blaming of Rapp’s feels? It’s something I’ve experienced so much that I literally threw up in my mouth the first time I read this.

Don’t weaponize your sexual orientation, Kevin. You could’ve come out any other time, but only did so in order to distract from these issues. Stars from Billy Eichner to Zachary Quinto called bullshit on this quickly, and they weren’t alone. Organizations including GLAAD decried the situation, angry that many news agencies focused on Spacey’s sexuality rather than his pedosadistic actions… especially as more of Spacey’s victims and their families – like Heather Unruh and her son – come forward.

Spacey is now ‘seeking treatment’ of some sort of nature, though the exact thing is undisclosed. If he thinks dealing with alcoholism or pedosadist tendencies 30 years later will fix this, he’s sorely mistaken.

This statement just played into age-old myths equating all gay men to pedosadists. It’s absolutely disgusting for the queer community. I, for one, refuse to wrap him in our rainbow flag as a gay sibling. Anthony Rapp, on the other hand, will always be welcome in our community.

Back to Louis C.K….

photo of a person silhouetted against a starry sky - white text "THESE STORIES ARE TRUE. Louis C.K."

If you haven’t read Louis’ statement, I highly suggest doing so. I want to preface all this by saying I don’t believe this absolves Louis of his actions nor should it. This apology, though, is far better than any we’ve seen so far – especially in comparison to Spacey’s kinda-BS-statement-thing.

Unlike Spacey and others, Louis acknowledges that the actions he took were not okay. In addition, the sexual advances he made towards these women put them in an impossible situation. He admits that he abused both his power and his fame in his actions, something no other apology I’ve read takes into account.

Something that I’m especially grateful to see is Louis acknowledging his privileges: “I have spent my long and lucky career talking and saying anything I want. I will now step back and take a long time to listen.” It feels like he’s been reading a variety of articles on how to respond to being called out – and acting based on them.

I won’t say that this statement is the best possible one. However, it’s the best one I’ve seen thus far… The recognition of abused power, harm done to many people in the process, and more is something we need to see. I’m sad that it takes people going through horrible experiences for us to see what apologetic behavior should look like. That said, it’s only good in comparison to the shittastic statements like Spacey has made. Louis spent years avoiding these allegations and hiding from them. Clearly, he knew then that these actions were wrong… so why apologize now? Is an apology enough, especially when he doesn’t even actually say he’s sorry?

I just don’t know.

What’s next?

The only people who can accept an apology are those harmed. I can’t say, as someone outside the specific situation, whether or not Louis’ statement does the trick. Regardless of how anyone feels about it, the proof is in the pudding, right? It won’t be until people see sustained changed behavior that the apology becomes fully recognized.

Apologetic words mean next to nothing if you don’t institute the changes to back them up. When confronted about their actions, many abusers will show sorrow or remorse. Frankly, that sorrow is more related to being caught than the harm itself. Each time I staged an intervention for my abusive mother, for instance, tears would flow and hugs would be freely given. Things would change for approximately two weeks. After that, though, the harm started creeping back in.

Most abusers, like C.K., commit harmful acts because of a power trip. That’s why we must constantly keep power in check using intersectional means. The more we work to dismantle what power like this can do, the more people we can protect from serial abusers.

Speak out. Say something when you see something inappropriate. Raise some hell.

Last minute addition:

I found Ellen Page’s recent post on things she’s been through incredibly moving. Please go read it. My favorite part is that she acknowledges her privilege while recognizing the disproportionate amount of abuse BIPOC endure:

Let’s remember the epidemic of violence against women in our society disproportionately affects low income women, particularly women of color, trans and queer women and indigenous women, who are silenced by their economic circumstances and profound mistrust of a justice system that acquits the guilty in the face of overwhelming evidence and continues to oppress people of color. I have the means to hire security if I feel threatened. I have the wealth and insurance to receive mental health care. I have the privilege of having a platform that enables me to write this and have it published, while the most marginalized do not have access to such resources. The reality is, women of color, trans and queer and indigenous women have been leading this fight for decades (forever actually). Marsha P. Johnson, Sylvia Rivera, Winona LaDuke, Miss Major, Audre Lorde, bell hooks, to name a few.

Further reading:

Heading to ACR

This afternoon, I board the first of two flights on my way to San Diego for the American College of Rheumatology annual meeting!

I’m incredibly excited to be attending this year. It’ll be my first year there. I’m unsure what exactly to expect. I’ll be covering sessions I attend here, when relevant. Sadly, there is no sex session this year – go figure!

If you’re in San Diego, hit me up! I leave Wednesday morning but would love to see you in the meantime.

Awareness Calendar for November

photo against animated leaves with yellow-orange text: "Awareness Calendar for November"

Month:

  • Adoption
  • Alzheimer’s Disease
  • Bladder Health
  • COPD
  • CRPS
  • Diabetes
  • Diabetic Eye Disease
  • Epilepsy
  • Family Caregivers
  • Gluten-Free Diet
  • Healthy Skin
  • Hospice & Palliative Care
  • Impotency
  • Lung Cancer
  • Manatees!
  • Mouth Cancer
  • Movember
  • Native American Heritage Month
  • Pancreatic Cancer
  • Prematurity
  • Pulmonary Hypertension
  • Stomach Cancer

Day/week:

  • International Lennox-Gastaut Syndrome Awareness Day (1)
  • National Stress Awareness Day (4)
  • National Diabetes Education Week (5-11)
  • Patient Blood Management Awareness Week (6-10)
  • National Canine Lymphoma Awareness Day (7)
  • Intersex Day of Remembrance (8)
  • World KC (keratoconus) Day (10)
  • National Hunger and Homelessness Awareness Week (11-19)
  • World Pneumonia Day (12)
  • Mouth Cancer Awareness Week (12-18)
  • World Diabetes Day (14)
  • Global Antibiotic Awareness Week (14-20)
  • World Prematurity Day (17)
  • World Pancreatic Cancer Day (17)
  • Restorative Justice Week (19-26)
  • International Survivors of Suicide Day (19)
  • Transgender Day of Remembrance (20)
  • GERD Awareness Week (23-29)
  • National Day of Mourning (23)
  • Unthanksgiving Day (23)
  • National Day of Listening (23)
  • National Espresso Day (23)
  • Native American Heritage Day (24)
  • International Day for the Elimination of Violence Against Women (25)
  • International Day of Solidarity with the Palestinian People (29)
  • International Self-Harm Awareness Day (30)

Chronic Sex Gets Press!

B&W photo of a person typing on a laptop; the laptop has teal words "Chronic Sex Gets Press!" and white words "Chronic Sex"

In case you’ve missed some of the amazing things happening in the last few weeks, Chronic Sex is taking off!

I was recently featured in Broadly’s piece “Having a Chronic Illness Doesn’t Mean Giving Up Sex” by Nicole Haase.

I was also just quoted in Teen Vogue, too, in Ariel Henley’s piece “Why Sex Education for Disabled People Is So Important.”

Other press you may have missed:

You can find others over at my writing site.

Life is feeling just a little bit surreal lately.

Pelvic Floor Therapy: Appointments Three and Four

B&W photo underwater with teal overlays and white text "Pelvic Floor Therapy: Appointments Three and Four" and "Chronic Sex"

I had my fourth pelvic floor therapy appointment yesterday. I left with a very massaged butt.

For some reason, it feels a little odd that an older gal is the one that did it. It works, though!

When I last wrote about PFT, I was struggling with a lot of pain. Trying new exercises – especially with my spine/neck – is rough. Now that I’ve weaned off the daily use of muscle relaxers, the PFT stuff is catching up to me, too.

Appointment three consisted of an external exam focused on my butt. What we found was that I have a very tight piriformis muscle too! This connects the spine with your leg and helps control your hip movements. It can even cause some sciatica-like pain!

It also explains a lot. My left hip is very painful at times, something that seems to be related to my overly tense muscles. I’m having to do a lot of exercises or movements around opening up the hips, like sitting crosslegged.

For appointment four yesterday, we focused on manual manipulation of this muscle… so, like I said, a sweet older lady spent a while rubbing my butt. Between her, my new acupuncturist, and the hubs, I’ve really been getting a lot of butt action!

It’s a really odd sensation. There’s a lot of tension there. I don’t seem to notice it unless someone is applying pressure, though. It’s very similar to having a tight IT band. It makes sense – the pelvic floor muscles, leg muscles, and back muscles all work together. It’s part of why my lower back pain makes so much sense, too.

I mean, that and my bulging disc.

I should’ve expected it, but I’m dealing with increased pain as we try to improve these muscles. It’s not my favorite thing, especially when it means waking up with more vaginal pain.

For now, I’m focusing on a few exercises: squatting, hip flexor stretches, and squeeze/contract. The only ones that seem to help are the hip ones, though, so that’s where my focus is. Hopefully, things won’t be quite as painful soon.

Chronic Sex Chat 101: Participating in Twitter Chats

black text against a white background: "Chronic Sex Chat 101 Participating in Twitter Chats" above the blue Twitter bird

Have you wanted to participate in Twitter chats, but aren’t sure how? Wondering about the best ways to lurk? You’re in luck!

Twitter basics

Since not everyone spends all day on social media, here are some basics about Twitter.

I find it to be a great medium, especially for disability activism. That said, there is a lot of harassment and abuse on Twitter, too. They have a history of not condemning actual hate speech, siding more often with aggressors especially in marginalized communities.

Anatomy of a Tweet

Let’s look at a Tweet, shall we?

Tweet from Chronic Sex (@chronicsexchat) at 4:04 PM Central Time on 14 Oct 2017 with 3 retweets and 10 likes: "Blocking someone for [new line] Self-care [new line] Care of others [new line] Energy reservation [new line] Any other reason [new line] Is something that no one should have to explain"

As you can see, this is the Chronic Sex Twitter account posting something. There’s a time stamp here along with some information. We see that this has gotten 3 Retweets, listed in text but also as the recycle symbol at the bottom there. A Retweet or RT is when someone clicks that recycle button and reposts your content on their page. It still comes up as your tweet with nothing changing, aside from a person’s followers being exposed to what you’re saying.

Someone’s followers may also be exposed to your tweet if who they follow has ‘liked’ what you say. Here, we see that 10 people ‘liked’ this tweet as demonstrated again in text and with a little heart. To like someone’s tweet, you simply click that heart.

There’s also a text bubble at the bottom with a one next to it. This means there is one reply to this tweet. In this case, I replied to it myself to expand on my thought. When people do this, it’s called a thread.

That little carrot in the upper right allows you to copy the link to tweet or share this elsewhere, embed the tweet, or even do things like report content as long as you’re logged in.

Additionally, you can now quote-tweet which allows you to add a short comment while sharing the tweet in question.

Quote tweet example - original tweet from Cameron Esposito: "One more time: the President of the United States said the Vice President wants to hang all queer ppl" with my quote above it "If you weren't already concerned, you should be"

One of the best uses for this is to add trigger or content warnings. A post on these is coming soon, but some of the most important to add are gifs in link, sexual assault, rape, childhood sexual abuse (or CSA), murder, death, suicide, suicidal ideation, and various forms of discrimination (ableism, transmisia {gifs in link}, misogyny, etc.).

Twitter Profile

It’s always good to look at an account’s profile page to learn more.

Twitter profile for Chronic Sex (@chronicsexchat)

There is a banner across the top, much like Facebook has. There is also a circular profile photo. You have your name as you want it displayed, which is different than your handle. For instance, because someone else has the handle @chronicsex, ours is @chronicsexchat despite the fact that our organization’s name is Chronic Sex.

You can include hashtags in your profile bio. You have a limited number of characters in which to express what you want to show the world. Brevity is something Twitter is great for, though they are working on expanding character limits for Tweets. This is rolling out in stages, though, so don’t expect an expansion for your account soon.

You can also pin a tweet to the top of your page. Most people use this to share either a popular tweet of theirs or the beginning of a thread to share more about themselves than they can in the bio.

A quick note

In this age of White Supremacists on social media, there are some very important things to keep in mind. It may be best to have a screen name that isn’t associated directly with your name. A nickname or something might be good.

If anymore makes comments to you that are uncomfortable, you have every right to block them. There are two features that I suggest using. The first, of course, is block. The second is mute. You can mute people while they participate in chats that might be triggering to you, etc.

General Twitter chats

Most Twitter chat hosts will post rules specific to their chats in the moments leading up to chat time. When in doubt, stick to those rules.

Most importantly, in order to fully participate in chats, your profile should be set to public. You also need to include whichever hashtag the chat is using. That way, people will be able to see and interact with your tweets.

The easiest way to follow a chat is using that hashtag. Type the tag (including the hash) into your search bar. You’ll be taken to a page full of tweets with a navigation bar like the one below:

navigation bar from Twitter: Top, Latest, People, Photos, Videos, News, Broadcasts

If you click on ‘Latest,’ you’ll see tweets as they come in under the tag. You can also use TweetChat or another third-party site. These tools ask you to log in with your Twitter information. TweetChat automatically adds the hashtag for the chat to every tweet you send which is valuable.

Questions may be either numbered or labeled as Q# or T#. Q stands for Question and T stands for Topic. Chats using the Q format generally ask that answers then use A# or quote-tweeting. This way, it’s easier to keep track of which question you’re addressing. If you’re on a chat using T, know that they tend to be shorter and focused on up to 5 topics in total. That’s not a rule but seems to be the case.

I always suggest lurking for one or two chats. You’ll start to get a feel for the people within the chat as well as how things are handled.

#ChronicSex chat

Ground rules

First off, I do ask that we stick to the topic at hand as much as possible. There are a few reasons for this. If we used the tag as just another way to talk about everything, it wouldn’t mean as much. There are also topics that can be quite triggering and I like to give people a heads up on if we’re discussing those things. It’s bad to come into a space and then find yourself triggered because of a lack of warning.

Likewise, staying on topic can be incredibly important for many of us who need structure. I need rules. It’s a part of my anxiety and growing up in isolation. Rules and guidelines can help set expectations that, for many of us, are beneficial.

I also always ask that people refrain from the following while participating in chat:

  • Bigotry or discrimination
  • Insulting or bullying
  • Selling ‘cures’ or any ‘replacements’ for medications
  • Cockblocks to connection like
    • Unsolicited advice
    • Comparisons
    • Cure Evangelism
  • Hitting/creeping on people
  • Soliciting sex

It’s also important to know that, while someone may share their personal success stories with something, our chat is not set up for giving medical advice, endorsing types of care or activities, or replacing information from your personal healthcare team.

Chat details

For our chat, we utilize the Q# system. Since many people don’t feel comfortable using our hashtag for a variety of reasons (work, family, etc), I’ve also started asking as many questions as I can via poll. This is great because you can click an answer that resonates with you and it’s anonymous.

Chronic Sex Twitter acct (@chronicsexchat) asks "Q2: How are you feeling right now? #chronicsex" Poll answers are: Scared AF (9%), Angry (4%), Burnt Out (72%), or Powerless (15%). This had 46 total votes.

People are welcome to answer the questions via poll, reply, quote-tweet, or whichever method(s) are easiest for them.

If you’re answering a question with your own words, your answer may be retweeted or quote-tweeted by myself or others in the chat.

Our chat time is 8 pm Eastern | 7 pm Central | 6 pm Mountain | 5 pm Pacific. If you’re outside of these time zones, please consult a time zone converter. Unfortunately, my health currently prevents me from running two chat times. That said, the polls are open for 24 hours after they’re posted and plenty of people participate throughout the next week. It’s perfectly fine to jump in whenever it’s most convenient for you.

Interested in other chats?

Here are a few other chats you may be interested in.

SpoonieChat – Weds, 8 pm Eastern

Dawn Gibson started this chat a few years ago to help bridge the divide across illnesses and disabilities. Many of us face similar issues – such as planning for disasters – and can learn a lot from each other. Commonly referred to as the web auntie, Dawn is one of the most caring people. I’m lucky to call her my friend.

HCLDR – Tues, 8:30 pm Eastern

Run by Colin Hung and Joe Babaian, the acronym stands for Healthcare Leader. This chat talks about a variety of issues those working in and around healthcare face today, regardless of what role we play. Patients are always a large part of the discussion – and always welcome.

FilmDis – Sat, 9 pm Eastern

Dominick Evans is a well-known disability activist. He’s been running this chat since 2014 due to the lack of disability representation in film and media. Recently, FilmDis took off as an official national non-profit. Past topics have included disability in Disney, video games, and shoddy Autism representation in shows like The Good Doctor.

CriptheVote – varying schedule

Run by three prominent disability activists – Alice Wong, Andrew Pulgrang, and Gregg Beratan – CriptheVote is a space to talk about disability and politics. While their schedule is varied, the tag is always engaged with people sharing everything from fighting the dismantling of the ACA to interviews with politicians.

Many others are out there

I highly suggest finding organizations centered around illnesses you may have and following them. Many have chats at least once a month.

If you’re looking for others, I suggest checking out Yuri’s calendar. Note that times are listed in Pacific Time. Symplur also keeps a list of Twitter chats registered on their site.

Hope that helps a bit with Twitter basics – happy tweeting!