Vote for Chronic Sex on Kinkly

Kinkly Top 100 Sex Blogging Superheroes badges against a white background; a transparent pink text box runs across the bottom with white text "Vote for Chronic Sex on Kinkly"

It’s that time of year again – time to vote for Chronic Sex to become one of Kinkly’s Top 100 Sex Blogging Superheroes!

I’ll be honest – I asked the same last year and didn’t expect anything to come from it. Chronic Sex got into the top 60! This year, I’m hoping we might even move up a bit.

How can you help?

Pop over to Chronic Sex’s profile on Kinkly to vote. They’re only looking at profiles that receive 5 or more votes by October 9th, so get on it!

When you’re done, make sure to vote for other amazing bloggers you want to support. Some of my favorites in alphabetical order:

Don’t delay – vote for us today!

Awareness Calendar for October

green lines around outline of white photo with orange pumpkin: "Awareness Calendar for October - Chronic Sex"

Month:

  • ADHD
  • AIDS (December is more popularized as AIDS awareness month, but October is a secondary month)
  • Breast Cancer
  • Dental Hygiene
  • Depression Education and Awareness
  • Disability Employment
  • Domestic Violence
  • Down Syndrome
  • Dwarfism
  • Dysautonomia
  • Dyslexia
  • Emotional Wellness
  • Ergonomics
  • Eye Injury
  • Gaucher Disease
  • Health Literacy
  • Healthy Lungs
  • Home Eye Safety
  • LGBT History
  • Liver
  • Long-Term Care Planning
  • Menopause
  • Niemann-Pick Disease
  • Organize Your Medical Information
  • Patient-Centered Care
  • Physical Therapy
  • Pregnancy and Infant Loss
  • Rett Syndrome
  • SIDS
  • Spina Bifida
  • Talk About Your Medicines

Day/week:

  • Mental Illness Awareness Week (1-7)
  • World Animal Day (4)
  • World Cerebral Palsy Day (6)
  • World Mental Health Day (10)
  • National Coming Out Day (11)
  • Bone and Joint Health National Action Week (12-20)
  • World Thrombosis Day (13)
  • Metastatic Breast Cancer Awareness Day (13)
  • National Dessert Day (14)
  • Pregnancy and Infant Loss Awareness Day (15)
  • National Latino HIV/AIDS Awareness Day (15)
  • Global Handwashing Day (15)
  • National White Cane Safety Day (15)
  • International Infection Prevention Week (15-21)
  • National Healthcare Quality Week (17-22)
  • World Pediatric Bone and Joint Day (19)
  • Asexual Awareness Week (19-25)
  • World Osteoporosis Day (20)
  • National Pumpkin Cheesecake Day (21)
  • International Stuttering Awareness Day (22)
  • Respiratory Care Week (22-28)
  • Lung Health Day (25)
  • Intersex Awareness Day (26)
  • World Stroke Day (29)
  • World Psoriasis Day (29)

Chat Updates & Schedule Thru Dec 2017

on left, a dark grey text box with yellow text "chat Updates & Schedule Thru Dec 2017" and white text "Chronic Sex" | on right, a femme sits cross-legged on a bed while typing on a laptop

I’m canceling our chat tonight for a fun reason – women’s hockey!

This got me thinking, though. Between traveling and special events, our schedule changes a little for the rest of the year. The following are days I’m hoping to hold our chat:

October

  • 5
  • 12 (World Arthritis Day, so expect a topic around that!)
  • 19
  • 26

November

  • 2
  • 16
  • 30

December

  • 7
  • 14
  • 21
  • 28

I may cancel these as needed for health stuff. When in doubt, check our Twitter hashtag #chronicsex.

Our chats are usually around one hour and are held on Twitter. Start time is 8 pm Eastern – 7 Central – 6 Mountain – 5 Pacific. If you’re in another time zone, check the time zone converter.

As those of you who have been following chat for a while know, I was hoping to have a second time to be more accommodating to those outside North America. I’m struggling enough with my health right now that this isn’t an option. However, one thing I’ve done to make our chat a little more accessible is alter how I ask questions.

Instead of focusing only on open-ended questions, I’m asking questions using polls (when it fits). This means that anyone can answer the question anonymously via poll for 24 hours after the question is posted. This helps people who are in different time zones, unable to make chat times for other reasons, and those who need to be more anonymous but would like to participate in the chat. You can still answer open-endedly or expand on your poll answer if you like.

I’m also hoping to get the podcast going again soon. If you have a topic you’d like to hear about, whether for chat or a podcast episode, please let me know!

CHIP Needs Our Help

white background with a stethoscope featuring a red heart; black text at top middle "CHIP Needs Our Help" and at bottom middle "Not Standing Still's Disease"

The Children’s Health Insurance Program (CHIP) was passed in August 1997, taking effect the next month. What this program does is give states funds (that they must match) that help to cover children living in low-income households that don’t qualify for Medicaid. It’s undergone expansion, adding protection for a couple million more children thanks to President Obama.

Today, CHIP covers approximately 9 million children from low-income families. These children are at risk of losing their healthcare. See, funding for CHIP ends at the end of this month – so, Saturday. The Senate has refused to discuss renewing funding for CHIP since early this year, focusing on repeal-and-replace efforts instead. Without immediate renewal, over a million of these children would lose insurance and the remaining 8 million would see reduced benefits.

The Senate Finance Committee, led by Ron Wyden and Orrin Hatch, have introduced a bill – S 1827 – that extends funding for another five years. However, the Senate has failed to act on this.

Do what you can today to reach out to your Senators and ask them to discuss this bill NOW.

  • Contact your Senators
  • Protest and picket (if able)
  • Get loud on social media
    • Use tags like #saveCHIP
  • Send letters to the editors or reach out to your local news to explain your concerns

Let’s come together to ensure that these children aren’t left behind.

HR 36 and HR 620: Two Bills We Must Fight

Photo of the Supreme Court building against a blue sky - a black text box on the lower half with white text: "HR 36 and HR 620: Two Bills We Must Fight - chronic sex"

After the good news that the Graham-Cassidy plan wasn’t going to be voted on, you might’ve thought we’d get a break.

Sadly, there are two bills right now that we need to fight.

HR 36: Pain-Capable Unborn Child Protection Act

In 2015, the House approved this but the Senate did not. Unfortunately, Trent Franks in Arizona decided it was time to try again. It’s unknown right now if the Senate would approve this once it passes in the House, but Cheeto Voldemort has vowed to sign it if so.

What this bill does is make it illegal to perform or attempt to perform an abortion if the fetus is 20 weeks or older. This is targeted toward abortion performers (i.e., doctors, etc), and those breaking this federal law would be subject to fines and/or jail time.

While people say this does not affect the person seeking the abortion, I doubt that is true. There are exceptions for rape, incest, and if the procedure is deemed medically necessary.

You can read the bill here. Note that the bill currently has support from representatives in just about every single state.

HR 620: ADA Education Reform Act of 2017

Contrary to what the title might suggest, HR 620 negatively impacts the ability of the Americans with Disabilities Act (ADA) to work. The ADA, passed 27 years ago, was supposed to secure certain rights for those of us with disabilities. Instead, there is a lack of enforcement of the ADA, with businesses and schools getting away with not making necessary changes.
This bill would only make that worse. It would make it nearly impossible for many disabled people to make a formal complaint about ADA violations. The complaint would first have to be in writing with very specific language. If (or, really, when) the business/whatever fails to respond and/or update things, it’s then on the disabled person to gather data to send in.
There’s no reason for this. All this is doing is making it harder for us to report businesses that are not compliant with a nearly 30-year old law.
Check to see if your representatives are currently co-sponsoring this. See also the following articles:

What to do

Like with Graham-Cassidy, we’re going to have to get loud over these bills.

  • Contact your Senators
    • Call them at 844-859-3118
    • Use ResistBot
    • Talk to them on social media
    • Email
    • Fax
    • While you’re at it, tell them it’s unfair and illegal to strip the ACA’s funding
  • Protest and picket (if able)
  • Get loud on social media
    • Use tags like #savetheADA
  • Send letters to the editors or reach out to your local news to explain your concerns
You can also take a moment to contact members of the House Judiciary Committee as listed below:
  • Chairman Bob Goodlatte (VA-06)
  • Rep. Jim Sensenbrenner, Jr. (WI-05)
  • Rep. Lamar Smith (TX-21)
  • Rep. Steve Chabot (OH-01)
  • Rep. Darrell Issa (CA-49)
  • Rep. Steve King (IA-04)
  • Rep. Trent Franks (AZ-08)
  • Rep. Louie Gohmert (TX-01)
  • Rep. Jim Jordan (OH-04)
  • Rep. Ted Poe (TX-02)
  • Rep. Tom Marino (PA-10)
  • Rep. Trey Gowdy (SC-04)
  • Rep. Raúl Labrador (ID-01)
  • Rep. Blake Farenthold (TX-27)
  • Rep. Doug Collins (GA-09)
  • Rep. Ron DeSantis (FL-06)
  • Rep. Ken Buck (CO-04)
  • Rep. John Ratcliffe (TX-04)
  • Rep. Martha Roby (AL-02)
  • Rep. Matt Gaetz (FL-01)
  • Rep. Mike Johnson (LA-04)
  • Rep. Andy Biggs (AZ-05)
  • Rep. John Rutherford (FL-04)
  • Rep. Karen Handel (GA-06)
  • Ranking Member John Conyers, Jr. (MI-13)
  • Rep. Jerry Nadler (NY-10)
  • Rep. Zoe Lofgren (CA-19)
  • Rep. Sheila Jackson Lee (TX-18)
  • Rep. Steve Cohen (TN-09)
  • Rep. Hank Johnson, Jr. (GA-04)
  • Rep. Ted Deutch (FL-22)
  • Rep. Luis Gutierrez (IL-04)
  • Rep. Karen Bass (CA-37)
  • Rep. Cedric Richmond (LA-02)
  • Rep. Hakeem Jeffries (NY-08)
  • Rep. David Cicilline (RI-01)
  • Rep. Eric Swalwell (CA-15)
  • Rep. Ted Lieu (CA-33)
  • Rep. Jamie Raskin (MD-08)
  • Rep. Pramila Jayapal (WA-07)
  • Rep. Brad Schneider (IL-10)

Pelvic Floor Therapy: Day 1

B&W photo of a person with long dark hair wrapped up in a sheet and hiding their face; white text: "Pelvic Floor Therapy: Day 1" and "Chronic Sex"

Earlier this year, I made an urgent appointment with my primary care doctor. She’s also an OB/GYN, which I love. I had a spot of seborrheic keratoses on my pubis that alarmed me. I didn’t know what it was before the appointment but, in prepping for my boudoir shoot, I found this giant mole-thing.

It was kinda scary.

While I was there, though, I also brought up something I’ve been dealing with for a few months. I will wake up with pain in my pelvic region. At times, it can be throbbing, stabbing, or spasmodic. I’ll usually need to pee, but have a hard time easing up muscles to let myself pee. Afterward, the pain is still so bad that I have to get in the fetal position and shove a pillow in my abdomen.

After an invasive and dysphoria-causing transvaginal ultrasound, everything was found to be normal. Two weeks later, I reached back out to my primary care doctor to see if pelvic therapy might help. So now, in addition to spine physical therapy for a bulging disc, I get to do pelvic floor therapy.

Yay?

First appointment

Today was my first visit with my pelvic floor therapist. She is a little older and incredibly kind. I will admit, though, that I was a little nervous about the appointment.

Not only was I dealing with anxiety around having someone manipulate my vagina, but I also wound up dealing with some bowel incontinence earlier in the day.

a view of Kirsten's legs while she's on the toilet; her black boxer briefs from Tomboyx are visiable, as is a blue Ikea rug and while/beige tiles

Apparently, I’m not allowed to eat pineapple and drink juice anymore, says my GI tract.

I was worried about how this might affect things. Would we be able to do as much? Or, the more concerning question for me, was I going to just let loose everywhere?

Thankfully, I did not!

The first part of the appointment was spent talking about these spasms – when they happen, what might bring them on, etc. I mentioned my puzzling neurological stuff in addition to some rough abuse stuff I’ve been through.

It wasn’t exactly the easiest way to start a doctor-patient relationship.

Next, though, she pulled out a pelvis model and we talked through anatomy around the pelvic floor muscles.

pelvis model; the hip bones are visible along with the muscles that create the vaginal outside and the uterus poking out the top

Aside from the uterus popping out the top there, this is how a female pelvis looks. The hip bones are seen here in white with muscles in red. If you look closely, you can make out the urethra and vagina, too. One thing I always struggled to visualize was the different layers of muscles. This model comes apart so you can see the pelvic floor muscles both on the outside and inside.

The exam

It was really helpful to have a model to talk about the anatomy, but also for her to demonstrate what she was going to do with the exam.

The exam itself wasn’t horrible. I’m used to seeing my primary care doctor (who is also an OB/GYN) though, where I don’t have to make eye contact. That part got a little funky.

For those of you who haven’t had this type of therapy, the first thing is to switch from shorts to a hospital gown and lay on an exam table with a sheet over yourself. Next, the therapist feels around the outside of your pelvis – really, the outside of the labia and where it connects with your legs.

The exam moves to the inside, with the therapist using their fingers to check the muscles out. During different stages, they might ask you to clench or bulge/push out. This helps them to test the strength of your muscles.

My initial concern was that I might have loose muscles, but it’s the opposite! One thing we noticed quickly was that the left side of my pelvic floor was very tight. We then found the same at the bottom of my pelvic floor.

This isn’t super surprising. I tend to be tense in general. My left side is also the worst with every single health issue I have.

The treatment

For now, the first thing to do is start an at-home exercise. I mean, this is PT after all!

The one we decided to focus on for now is the submax:

This exercise is fitting for patients with pelvic floor tension or elevated baseline at rest. Begin at rest, contract your pelvic floor muscles gently, 70-80% effort. Hold the contraction for 5 seconds, then relax and release all tension for 5-10 seconds.

I am supposed to be mindful of my pelvic muscles, too. It’s easy to hold tension in pelvic muscles. Stress – ya know, like from begging Congress to not kill you – just makes that worse. Dealing with weakness in muscles can make them get tense trying to do their job, too.

There are some exercises that can help with pelvic floor tension as well. Right now, we’re avoiding those since I’ve got this bulging disc, but we will build up to them.

I’ll be seeing my pelvic floor therapist weekly before moving to biweekly. I’ll be documenting how things go here, too, because we need more resources on all this.

Have you ever tried pelvic floor therapy? What did you think?

Ways to Contribute to Wildfire Relief

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With hurricanes and earthquakes hitting parts of our world, many aren’t aware of the dangerous wildfires in the US. Currently, fires are ravaging Washington, Oregon, California, Idaho, Montana, and Colorado. You can get daily updates here.

I grew up in Oregon and have family all along the west coast and northwest. It’s scary to see what these fires are doing, especially with the lack of rain. Thankfully, it’s rained a bit over the last week or so. The fires rage on, though.

If you can help, please check out the following organizations and crowdfunding projects:

There are additionally fires in Canada that affected First Nations tribes like Ashcroft earlier this year.

911! Fight Against the Cassidy-Graham Plan

white background with red vertical lines on either side; black text "911!" and red text "Fight Against the Cassidy-Graham Plan" and black text "#savetheACA #ACAsavedmylife Not Standing Still's Disease"

I posted this earlier in the week on my other site, Not Standing Still’s Diseasebut wanted to repost here.

Update: public comments are due by 9 AM Eastern Time Monday morning (25th). You can email your comments to GCHcomments@finance.senate.gov or visit willtrumpcarehurtme.com‘s email assist.

Not only do we have to fight to protect the ADA, we still have to fight for healthcare.

I’m starting to worry that this is going to be every fucking quarter, but I digress.

You can read the 141-paged plan (referred to as Cassidy-Graham, Graham-Cassidy, Graham-Cassidy-Heller, and Graham-Cassidy-Heller-Johnson) but here’s the scoop on what this bill would do:

  • Eliminates subsidies for private insurance
  • Ends Medicaid expansion
  • Caps Medicaid money, leaving millions of people uninsured
  • Allows waivers to charge sick/ill/disabled patients more (fucking high-risk pools)
  • Stops requirements on ACA-required benefits
  • Repeals tax credits for middle class
  • Puts up barriers to health insurance for low-income people (and removes subsidies)

Cassidy and others have said this block grant program would simply give money to the states for them to decide. It’s essentially shifting ACA-type stuff to states rights type stuff, acting as though states could then keep ACA programs in place. Without the support at the federal level – and with a large number of anti-ACA governors – this won’t be the case.

One scary thing to note is that the Congressional Budget Office won’t have enough time to evaluate the bill before September 30th. This is the last day this bill could be passed with 50 votes (or 51 with VPence). Otherwise, filibuster could prevent the bill from being passed.

Graham-Cassidy-Heller (ACA Repeal) Simple Summary - Repeal and Replace is back. Take it seriously. Here's what it does: *Estimated 32 million will lose coverage within 10 years (not yet scored) *Ends Medicaid expansion. Health care for 11 million low-income adults. *Ends all subsidies for the exchange, replaced by a smaller and declining "block grant" *Block grant doesn't have to be spent on same population *Cuts coverage for low income seniors, children and people w disabilities by 7% by 2026 with a "per capita cap" (Yes, that's right -- a block grant AND a Lee capita cap) *Ends Federal protections on pre-existing conditions, life time caps and essential benefits. 50% of states expected to do so. *Ends all cost sharing payments to low income Americans *Ends all funding for coverage by 2026; 100% afterwards *Averages would be dramatically different: 20 states estimated to lose 35-60% of funding to move money to rural, red states *CBO has not estimated impact on premiums, but likely 20% spike next year *Would likely be presented to the House as "take it or leave it" if passes Senate *Provide no funding for recessions, natural disasters, public health emergencies, or price spikes *Targets women's health/family planning *Uses the same "50 votes" only partisan technique to pass; upends all bipartisan progress of the last two weeks - Source: Centers for Budget and Policy, prior estimates
Source: Andy Slavitt’s Twitter; see alt-text for description

This is a more radical version of repeal-and-replace efforts so far.

I’m tired of fighting, so I’m sure you are, too. If we don’t fight this one, though, we lose any progress we’ve made up to now.

What to do now:

  • Contact your Senators (especially if you live in South Carolina, Louisiana, Nevada, or Wisconsin)
  • Protest and picket (if able)
  • Get loud on social media
  • Send letters to the editors or reach out to your local news to explain your concerns

Some organizations opposed to this bill:

  • AARP
  • Adult Congenital Heart Association
  • ALS Association
  • Alzheimer’s Association
  • America’s Essential Hospitals
  • America’s Health Insurance Plans
  • American Academy of Family Physicians
  • American Academy of Pediatrics
  • American Cancer Society Action Network
  • American College of Physicians
  • American Congress of Obstetricians and Gynecologists (ACOG)
  • American Diabetes Association
  • American Foundation for the Blind
  • American Heart Association
  • American Hospital Association
  • American Lung Association
  • American Medical Association
  • American Nurses Association
  • American Osteopathic Association
  • American Psychiatric Association
  • American Psychological Association
  • American Speech-Language-Hearing Association
  • Amputee Coalition
  • Arthritis Foundation
  • Association of American Medical Colleges
  • Autistic Self-Advocacy Network
  • Blue Cross Blue Shield Association
  • Center for Medicare Advocacy
  • Children’s Hospital Association
  • COPD Foundation
  • Cystic Fibrosis Foundation
  • Family Voices
  • Federation of American Hospitals
  • Infectious Diseases Society of America
  • JDRF
  • Los Angeles LGBT Center
  • Lutheran Services America
  • March of Dimes
  • Nationa Association of Medicaid Directors
  • National Health Council
  • National Institute for Reproductive Health
  • National Multiple Sclerosis Society
  • National Organization for Rare Diseases
  • Planned Parenthood
  • Public Health Institute
  • Robert Wood Johnson Foundation
  • Volunteers of America
  • WomenHeart

Further reading:

Updated Sept 24

Ways to Help with Earthquake Relief

teal and yellow background with a photo of a pristine beach; under is a black text box with white text "Ways to Help with Earthquake Relief" and teal text "chronic sex"

I know that so many of us have been focused on recovery post-hurricanes. Right now, though, Mexico also needs our help.

On September 7th, an 8.1 magnitude earthquake ripped through Chiapas and Oaxaca. On the 19th, a 7.1 magnitude quake shook areas near Mexico City – and affected areas already hit on the 7th.

Brigada de Rescate Topos (website currently down) goes into fallen buildings to help get people – dead or alive – out. You can send them money via PayPal using the email donativos@brigada-rescate-topos.org.

You can buy goods from Amazon for the Mexican Red Cross’ wishlist.

Project Paz, a non-profit with roots in NYC and El Paso, TX, is collecting donations to help with recovery efforts.

Direct Relief is working in the area.

Salma Hayek is raising money for UNICEF’s relief efforts.

You can donate through GoFundMe campaigns or YouCaring, too. Some notable campaigns:

I realize the featured photo looks so happy. I got to visit Mexico earlier this year and took this beautiful photo right before leaving. My family has always had strong ties to Mexico, and these earthquakes break my heart.

Updated September 22

Flogging Ended My Year-Long Fibro Flare #KinkySexTips

a photo of a flogger (mixed medium of fluffy pink-purple and black leather) curled up against a grey couch; text "Flogging Ended My Year-Long Fibro Flare #KinkySexTips"

I’ve always been intrigued by BDSM and kink. I recently wrote a post about how the scene can bring useful things to anyone, especially in illness spaces. Naturally, when I attended the University of Guelph Sexuality Conference back in June, I hung out in their BDSM exploratorium.

The exploratorium was a very safe and respectful space, open to newbies and advanced kinksters to learn more about various kinds of play. It was great to be able to test out things, figure out what I was interested in, and talk with others about how my chronic pain might change things up.

I tried low-temp wax play and decided it wasn’t for me. Next, I had the same reaction with electrical play/e-stim, though I think that’s because of how much I utilize my TENS unit. I watched some rope play and hands-only impact play (punching, spanking, etc). Both were interesting to observe and I definitely want to do more with rope play in the future.

One station was set up for sensation play. It was so interesting. Scratchy, soft, leather, rough, hard, hands – we played with a wide variety of sensations on my forearms. Aside from being pleasurable, it was cool to be so present in my body for a positive reason.

The station I enjoyed the most was set up for impact play using instruments like floggers and paddles. My first go in the room, I spent time watching and observing. The second time, though, I offered to be a tester.

I got hit with a paddle, whip, flogger, and canes. During the negotiation process, I agreed to be hit just about anywhere, but the focus was on my back, butt, hips, and thighs. I had a few good bruises that lasted for a few weeks.

At one point, the person flogging me heard me go “Oooh!” My favorite thing is that they checked in, as did others watching, to make sure that was a good reaction – and it was.

After the event was over, I noticed that my pain was gone. I figured it would come back later in the day… but it didn’t. Now, I live with chronic pain, so it’s not that I was completely pain-free. However, the pain in my shoulders and neck was gone. It stayed that way for about a week despite a 15-hour drive back home.

Even after, though, my fibromyalgia pain was gone. I had been dealing with a fibro flare up for around a year – probably more – and it was finally gone. My rheumatologist and I had tried a bunch of stuff to get it to leave, but everything was basically a temporary solution.

Kirsten (short dark hair and black top) looks at a poster in a doctor office of the human anatomy/muscular system

Hell, even acupuncture – which worked at first – had lost efficacy.

It’s been just over two months since then. Despite the fact that I’m struggling to get adequate pain control and medical care for other things, my fibro is still cleared up. I have moments where it acts up more, but without a full flare – and mostly without the allodynia that was taking over my life.

I mentioned it to my rheumatologist at our latest appointment and she was ecstatic. When I told her how, she was really intrigued. We believe that, somehow, the BDSM play helped to rejigger the pain messages my body was sending. Researchers believe that mixed up pain signals are what fibro essentially is, after all.

In fact, ORCHIDS is going to do some research on BDSM and chronic pain to see what we can find! Stay tuned!

I can’t say that this will work for other people. What I can say is that I wish I had tried it a lot sooner instead of dealing with untreated pain.

If you’re interested in exploring BDSM tools more, I highly suggest checking out the collection Peepshow Toys has. SheVibe has some great stuff, too. In addition to being affiliates of ours, their shops are also just amazing.

This post is a part of the Kinky Sex Tips Blogfest ’17 run by Mona Darling. Mona is a former dominatrix who does sexual coaching for women. Make sure you check out her site because she’s running an amazing giveaway associated with these posts right now that includes coaching and great gifts!

a black-outlined square picture with white background features colorful icons in a circle that one would associate with kinky sex (floggers, masks, handcuffs, toys, etc) with a black outlined box just below middle-right of circle with black text "Kinky sex tips blogfest 2017"