This Week’s Chat is Wednesday, June 8!

This week, we’re doing a special chat! I am hosting #SpoonieChat for our dear friend Dawn. #SpoonieChat occurs on Wednesdays beginning at 8 pm Eastern (NYC) Time and running for two hours.

Our questions for this week will be based on gathering a better understanding of how sex is discussed for us chronic illness peeps:

Since we are doing a crossover with Spoonie Chat, please use the tag #spooniechat tonight. Note that there will be no #chronicsex tomorrow (June 9) then.

Q1: Please introduce yourself in a way you’re comfortable sharing.

Q2: How much do you feel your illness has affected your self-love, relationships, and sex life?

Q3: Have you found any activities, exercises, or resources to help with these issues?

The next questions ask for some imaginative thinking – put on your thinking caps!

Q4: Imagine you’re 20. What advice would you want to get on these subjects with illness?

Q5: Imagine you’re 50. What advice would you give to your child about these issues?

Q6: If you could have dinner with any famous person with an illness or disability, who would it be and why?

 

 

Chat Questions 5-26-2016

We have some exciting updates to share!

Chronic Sex now has its own Twitter and Instagram accounts! You can find both under @chronicsexchat. All of the chat questions will now come from the CS Twitter account instead of a personal account.

We’re also always looking for guest posts or anyone who may regularly want to blog – anonymously or publicly – here. We’re also looking for guests for our upcoming podcast! Make sure to email kirsten -at- chronicsex -dot- org if you’re interested.

YAY!

Without further ado, here are this week’s chat questions:

Our questions for tonight center around sex:

Q1: Please introduce yourself in a way you’re comfortable sharing

Q2: Do your HCPs (health care providers – nurses, docs, etc) ever ask questions about your sex life?

Q3: Do you feel that your HCPs could answer any sexy questions you may have?

Q4: What questions about sex and illness/disability would you like to see addressed?

Q5: If you could give advice to a college student with your condition (or your younger self) RE sex, what would it be?

Q6: Here in the US, it’s just about Memorial Day weekend. Do you have any fun long-weekend plans?

And please don’t forget to support our upcoming podcast! This is my last week in my day job because I’m working on taking CS full time. A little support would definitely go a long way!

 

 

Chat Questions 5-12-2016

Our questions for tonight are all about representation of sex and sexuality for the chronically ill/disability community:

Q1: Please introduce yourself in a way you’re comfortable sharing

Q2: How do you feel about sex as portrayed in the media? Positively, negatively, or mixed?

Q3: Do you have examples of positive chronic illness or disability-related sexuality in media?

Q4: Are there any people in the media (actors, singers, etc) with illnesses you’d like to see more about?

Q5: What would you like to see from the media in regards to sexuality and illness?

Q6: If you could have any movie star play your love interest, who would you pick & why?

Don’t forget to support our upcoming podcast!

 

 

Chronic Sex Podcast

Happy May friends!

I am currently leaving my job to take some time off to deal with some self-care issues.

Go figure, right?

The coolest part about this is that it allows me to work on a number of additional projects and ideas that have recently fallen to the side.

Like the Chronic Sex podcast.

That’s right! If you are addicted to podcasts like I am, you can soon get your fill of self-love, self-care, relationship, and sexuality issues relating to chronic illnesses and disabilities through your phone!

This will be a podcast that comes out every other week. The topics will alternate between Chronic Sex one week to general chronic illness and disability issues with our friend Kristin Coppens the next session for a segment we’ll call The Chronic Ks.

Would you like to assist in getting this project off the ground? Come check out our Kickstarter!

 

 

Questions for 4-28-2016

Hi all!

Due to illness, I didn’t do a great job this past week of writing up the questions ahead of time. Oops!

In order to be more accessible, I’m listing the questions in text-form below as well. 

Since this is post-chat, though, I have included some pieces of discussions from the Twitter chat or the private/secret Facebook group. If you would like to join that group, click here to friend me. Then send me a message about joining. You don’t have to stay friends with me, but it would sure be fun!

Q1: Please introduce yourself in a way you’re comfortable sharing.

Q2: What do you find the most frustrating about your illnesses and relationships?

People tend to protect themselves, reducing the serious of their relationships because of the need to be more flexible regarding needs, timing, etc. Other cited the emotional and mental toll pain takes on us all. Family – especially in-laws – tend to put unneeded pressure on our relationships.

Analogies can help us explain or relate to others. This is a part of why The Spoon Theory is popular.

Q3: What are some ways your loved ones (partners, family, etc) help with your pain?

Understanding. Helping us get to/from appointments and errands. Staying with us or hanging out, especially during flare-ups.

Q4: What are some things you wish loved ones would do to help? Is there a way to be more helpful? 

Calling when someone is at a store or running errands to see if we need/want anything. Bringing by take-out and spending time with us when we’re unwell is a huge help. Cook! Pick up prescriptions.

Q5: If you could help your loved ones understand only ONE of your symptoms, which would you pick & why? 

Fatigue/exhaustion was definitely the top answer. Unpredictability of illness issues was another high one. It would be nice if others could understand a little more what it is like to have to adopt certain mentalities/ways of thinking because of our illnesses.

Q6: What are you doing with loved ones over the next week to have fun?

What are some of your answers to these questions? Do you agree with fatigue/exhaustion being the top answer for question five?

Have a great week!

 

 

Milwaukee SHARE

Last week, I was honored to be able to attend some of the Milwaukee SHARE sessions. If you’re unfamiliar with SHARE, it stands for Sexual Health and Relationship Education. It is run by Tool Shed Toys, one of the most progressive and educational sex shops in the nation.

On Monday, April 4, I was able to attend their Health Care Providers Day.

The first session was “Talking About Senior Sex with Joan Price.” Joan is AMAZING.

One of the biggest takeaways from her session that I had was how sexual dysfunction can be related to non-sexual medical issues such as heart disease. Your physician should give you a full body exam when you present with sexual dysfunction symptoms instead of telling you to just use more lube.

Lube is always great, though.

Joan suggested sharing with your physician the following if you present with a sexual issue: “My sexuality is important to me.” Discuss how these issues affect your quality of life.

She also suggested creating an Advanced Sexual Directive. Many nursing homes and other assisted-living facilities have rules against sex and sexuality. Making sure that you have such a directive in place can help you to enjoy life should you need to live in such a place.

The second session Making Your Practice Transgender Friendly with Ashley Altadonna and Hudson P. of Tool Shed Toys.

This was a very useful session. I learned a lot about my own sexuality. Gender expression, for instance, was not a term I had heard of. It simply means the outward appearance a person chooses to give off and how that may tie into their gender identity.

I also learned some heavy statistics – 41% of transgender people are likely to have suicidality. Transgender patients are outed at doctor appointments, denied treatments, and treated horribly by physicians who don’t agree with their patients’ lives.

So much for the Hippocratic oath.

The third session Compassionate Care for Kinky People with Sophia Chase. Sophia is a dominatrix and rents out dungeon room for safe play. She’s also a sex educator and super cool human being.

I would like to be her best friend honestly.

She discussed the need for physicians to understand the difference between BDSM (bondage and discipline, dominance and submission, sadism and masochism) and abuse.

Sophia has lupus and also discussed how many people with chronic illness or pain get involved in BDSM at some level. There is an attractiveness to controlling some pain we receive.

I definitely see it after that session.

There are great communication and negotiation techniques utilized in BDSM that I think we can all learn from as well. More to come on that in the next few months.

The fourth session Ready, Sexy, Able: Sex and Disability with Robin Mandell (whom I credited in our chat questions last week as Robin Marshall – oops!).

We are not that far removed from asylums and other demeaning institutions. Some of the worst ones only closed in the mid-1990s.

Many of the group homes we have today aren’t great either.

Women with disabilities especially have low sexual/self-esteem and are more likely to be abused.

I really enjoyed some of the definitions Robin included in her presentation. The one I enjoyed the most was the definition of intimacy: caring, sharing, loving, vulnerability, trust, self-disclosure, risk-taking.

She also shared the following resources (which will go up on our resources page shortly):

  • Through the Looking Glass
  • Rocking the Cradle
  • Disabled Parenting Project
  • How I Became A Human Being
  • The Sexual Respect Toolkit
  • Sexuality & Access Project

To check out more information from the week-long set of sessions, visit Milwaukee SHARE’s Twitter page or their hashtags from the events:

  • #sharekickoff
  • #sharehcp
  • #sharesexgeek
  • #sharesrsex
  • #shareupdate
  • #sharesecrets
  • #shareplay
  • #sharethelove
  • #shareporn

 

 

Chat Questions for April 7, 2016

On Monday, I attended the Health Care Providers’ one-day conference on What Aren’t They Talking About? Sex and Identity in Clinical Practice with Milwaukee Share. It was an amazing day and I really learned a lot.
Tonight’s questions are based on what I learned from Joan Price, Robin Marshall, Ashley Altadonna, and Lady Sophia. There will be a full blog post on this coming soon, but for now enjoy tonight’s questions.

I hope you can join us tonight!

Chat Questions for March 31, 2016

 

Here are this week’s questions all about sleep!

Some resources and more on sleep:

Wait, Why Chronic Sex?

Since this site is focused not only on sex, why is it named Chronic Sex?

It is our belief that the way we relate to ourselves – self-esteem, self-compassion, self-love, and self-care – is a direct result of our illnesses. We treat ourselves negatively when we have flare-ups, neglecting self-care and self-love, trading it for self-degradation.

How we treat ourselves has a huge impact on our relationships, our sexuality, and our sex lives.

In order to improve our Quality of Life, we have to start improving how we relate to and see ourselves.

Countless apps and companies focus on adherence to medications or treatments, but few focus on self-care or self-love. Self Care Catalysts is a company that focuses on both and is looking to start a self-care movement – which we’re totally stoked about!

To take that further, though, there are few websites that focus on these issues with chronic illnesses.

Self-care is even more important for us… I write as I sit at home after debating for half an hour if my fibro pain was bad enough to stay home.

I’d be lying if I said part of starting CS wasn’t to help myself, too.

As far as why our movement is called Chronic Sex? Because it sounds sexy!