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Communicating With Your Partner 101

Communication is the foundation of any healthy and lasting relationship. That shouldn’t be a surprise. After all, no partner can read minds or guess what you need at all times. Most of the questions I get really boil down to partners not communicating due to fear, worry, stigma, and more.

The truth is that communication isn’t just stating facts and opinions. It’s the way we express emotions, empathy and support. One of the most important aspects of communication with your partner is telling them how you feel about them and expressing your appreciation, love and commitment. These words of affirmation and validation can make a huge difference in your relationship and strengthen the bond between you and your partner.

Let’s dig into some of the important things that you and your partner need to do so that you both feel loved, appreciated, and supported.

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Ways to Connect with a Long-Distance Partner During the Pandemic

post title against a white paper, red drawn, and pencil

2020 has been a painful year for most of us, from the pandemic to an economic collapse to racism and state violence. Many of us struggle in public, scared of catching COVID-19. I avoided going out at all for a few months. When I finally had to run into a store for something, my PTSD skills kicked in. I don’t know if they’ve ever calmed down, especially with Wisconsin now at number 2 in the nation for infections.

Yeah, I might’ve picked a weird time to go into public health.

We’re struggling in private, too, from panic attacks over ongoing isolation to existential crises to problems within our relationships. Those of us living with partners likely feel like we’ve had enough of them at times, despite how much we love them. For those of us dating someone who lives in another state, there’s a question around if and when it’ll be safe to see our partners again. With infection numbers ramping up again, it’s easy to feel hopeless about being with our loved ones again.

It’s hard. Relationships need connection. For many of us, that connection requires emotional availability, time together, touch, etc. – all things that are difficult right now.

So, how can we better cultivate our connection with a long-distance partner? My newest partner and I explore some ways that can help.

First, some don’ts. Don’t:
  • Listen to or follow every list you see. This one is kinda gross, focusing on toxic monogamy and some other BS I really wouldn’t recommend.
  • Forget to talk with your partner(s) about these measures before just deciding you’re going to do them.
  • Try to force something to work if it doesn’t fit into your relationship/dynamic.
  • Forget to check-in and ask for consent, especially for anything related to sexy things.
This is a great time for general relationship upkeep, like:

Talk about how often you’d like to connect.

This can be different for every partnership, especially if there are differences in time zone or schedule. The distance may make this difficult, so it’s important to be flexible and compromise.

Address issues as they come up.

Leaving issues or things that bug you out there before addressing them can make the situation worse. It’s important to keep a clear line of communication and get on the same page around expectations.

One thing I always try to recommend is having a night every week (or on a workable schedule for you) that allows people to check-in in a mostly-sober space about what’s going well, any issues that have come up, feedback, etc.

Mix it up.

It’s tempting to ask things like how your partner’s day was. Think about other questions or ways to change up the questions you ask.

Share the reasons you appreciate each other.

The pandemic is really doing a number on mental health especially. We could all use a reminder that we matter to someone.

Reconnect on things you might’ve touched on, but not recently.

This could include things like your yes/no/maybe list, soft and hard limits, boundaries, and more.

Look for new ways to connect!

Shared experiences are the backbone of the relationships. It’s more important than ever to cultivate our connection with partners. Set up date nights and really take time together. Here are a few ways that you can do this that you may not have thought of.

Build music playlists together.

Maybe it’s for a time you get to see each other. It could be just to have a shared connection working from home or going through daily tasks, too. Building playlists together lets people share memories, talk about preferences, and connect in ways that few things do. Many music streaming services like Spotify now have collaborative playlists, making this a lot easier than it used to be.

Watch shows and/or movies together.

I always love a date night where couples cook together, sit down, and watch a show or movie together. That’s a part of a relationship that isn’t necessarily there when you’re long-distance. Thankfully, there are tons of ways we can recreate some aspects of that experience.

There are a number of apps that bring options to watch things at the same time, such as Discord, Plex, and Netflix. Apps or plug-ins like Synaptop and Kast can help, too.

You might not be able to sit down and watch something at the same time, and that’s okay. Figure out a time when you will both have been able to finish the episode or movie. Sit down and discuss your reactions and thoughts.

Play games together.

No, I’m not talking about Truth or Dare (although that’s an option). There are a ton of options to play games together now, from phone apps to Steam, console games, and several options to play tabletop games online such as Roll20.

Write erotica together.

With how often I talk about my sex life, people tend to be surprised when they hear I struggle with using words during sexual situations. The nice thing is that doesn’t have to stay the case and, honestly, I’m lucky to have partners that are trying to help me deal with that.

I still like whining about it, so don’t tell them I said that.

These can be one-off episodes or long-lasting situations. You can write all the erotica together or switch back and forth for each ‘chapter.’ To make the process extra fun, consider incorporating fantasies or things you know your partner(s) really enjoy.

You could also consider recording it and letting your partner hear erotica read in your voice. Heck, you can even do this with scripts others have written, like those on Gone Wild Audio.

Send each other voice messages throughout the day.

One of the things a lot of us are missing being able to socialize. Sending each other voice messages throughout the day can help remind us that we’re more than our jobs and the lives we have within our homes. It’s also just nice to hear a voice that isn’t in a work meeting or on another freaking webinar.

Take more pictures and videos.

Along with our struggle around socialization, it can be really comforting to actually see our partners. These pictures or videos don’t have to be sexy, although that can be fun. Just ensure that you have consent before sending sexy things.

Talk on the phone.

I generally detest phone calls, but I have really been missing interacting with key people in my life. When I’m on the phone with Sir, it feels like the miles between us melt away. Instead of worrying about time zones or obligations, we’re both in the same place, even if it’s just our voices.

Have video calls!

Look, I know Zoom Fatigue is all the rage to talk about. In the disability community, we’ve been relying on Zoom and other video call platforms for ages, though, and it’s a lot different for most of us.

It’s also a lot different to talk to a lover on video than sitting in a work meeting.

There are, of course, more niche technological things that allow for connection, including:

I don’t really have experience with these, so I’d suggest doing a good amount of research before investing in these costly things.

Send snail mail.

This is something that I do with a few of my close friends. With all of the digital stuff, it’s nice to have a tangible reminder that someone cares about you. From care packages to simple notes, it’s a really sweet thing to receive or to send off. Cute ‘just because’ gifts are always precious.

Consider sweet things, like writing a series of letters labeled ‘open when ___’ (e.g., when you’re having a rough day).

Read a book together.

Reading together is something I think is so intimate. Combine this with reading out loud to each other on a call, etc., and it can be a really enjoyable way to listen to your partner’s voice. Plus, you can trade off on who picks out the title, meaning you’re learning more about your partner and their likes than you might realize right away.

You can also read books one at a time and send them off to your partner. It’s fun to write cute notes in the margins – and a good excuse to send other tangible things!

Give each other little tasks.

Even without power exchange, completing tasks can bring a sense of fulfillment. These can be loving, fun, or sexy. If you know that, say, your partner struggles with putting away laundry, you can encourage them with rewards – or even punishments if they don’t complete the task.

Consider making plans for when you’ll get to see each other.

Right now, we need things to look forward to. It’s been a really hard year and most of us don’t know when we’re going to be able to see or visit many people we care about.

One thing that has given me a lot of joy has been planning a secluded getaway with Sir where COVID-19 can be the last thing on both of our minds. I don’t have to think about it for work or personally, and neither do they. Being in a spot where we’re not going to be able to really use our phones forces us to unplug. Thankfully, I think we both could really use that.

Lastly? Keep communicating, even when it feels awkward.

Look, communicating effectively can be really awkward. You might feel like you’re asking questions that seem silly or like things you should already know. It gets easier the more you continue to communicate. Thankfully, awkwardness is usually pretty endearing, too!

Pick Up Women’s Health This Month!

If you take a look at the latest copy of Women’s Health magazine, you’ll see a familiar face around page 156.

two photo collage on a black background; 1-cover of the May 2018 issue of Women's Health with Anna Farris; 2-photo of Kirsten leaning on Theron’s shoulder in the magazine

T and I are in the magazine talking about how we make love work with depression and other mental illness. Our blurb is small, but it means so much to me.

Sometimes we forget the impact we have on others just by sharing our own stories. This was a much-needed reminder to keep telling my truth.

I picked up a couple extra copies, so let me know if you want one and I’ll be happy to send it out.

How to Get More Hits on Dating Sites

photo of a white appearing femme with a dark shirt and pink painted nails looking at their phone with a laptop in front of them - on left, a purple square text box with white text "How to Get More Hits on Dating Sites" and "Chronic Sex"

The dating world is odd. It’s not the same as it was a decade ago, but that doesn’t mean changes are bad. With so many apps and sites to choose from, it can be hard to figure out why you aren’t getting as many hits as you’d like. After playing with some of the leading sites and apps, I came up with some tips.

A Word About Disclosure

I always err on the side of disclosing too much rather than not enough. Look, I’m a “too much” person as it is, ya know? Why pause that for dating? I shared the basics of my health issues on my first date with my husband and I’m not shy about sharing these things in general.

Does that mean I may get fewer likes than an abled person on a dating site? Perhaps – but it also means the people who talk to me know more about what they’re getting into and choose to talk with me more. I hate nothing more than to get invested in someone, only to find that they’re ableist AF.

Photos

What kinds of photos have you got on your profile? If the only pictures you have are of kids or memes, expect fewer likes. It’s hard to meet up at a bar and know who you’re looking for if you only have a pet, a child, and a Wolfenstein meme to go off of.

When you’re putting up photos of yourself, make sure to have current ones towards the front. It’s great that you really love your senior high school photos, but you probably don’t look like that anymore. Don’t be like people I know who shared photos a decade old and moved halfway across the world for each other based on that and chatting.

Only putting up pics of you with pals or family makes it hard for someone to see you for you. They might think your username is tied to Great Aunt Gertrude! Try to put up at least one picture of you alone (or with a pet!) so that people know who you are. To get maximum hits, that should be your profile picture, too.

Some apps and sites have limitations on what photos can be shared, while others don’t. Keep this in mind as you choose the photos that display your life, personality, and favorite things.

Bio

OkCupid was great for long bios until they started forcing people to use first names (while publicly shaming some people’s usernames). They’ve partially walked their stance back, but the fact remains that it’s no longer a safe place for people who are trans, polyamorous, have stalkers, or have unique names. I liked their biography setup the most, especially as you can answer random questions and see who near you has similar answers. Alas, since it’s unsafe, we have to consider how else to write effective bios for other sites and apps.

Most sites only allow a snippet of information that OKC allowed. The most important thing to consider when writing your dating bio is what is most important to you. If you’re mostly looking for someone else who likes the horror genre to hang out with, don’t forget to put that. Other things that are a must: pronouns, wants, do-not-wants, and sexual orientation.

Your bio is also a great place to put any illness or disability-related things you want someone to know. Should they avoid fragrances? Do you need wheelchair-accessible spaces? Will being around shrimp kill you? Do you have a service animal? These are great things for people to know if they want to invite you out for dinner.

Personality

Does your personality shine throughout your profile? Does it feel like ‘you’ or like a stranger? I find it much more comforting when things are written in similar ways to how I would say them. Because of that, I tend to use whole sentences. Others condense for space or sub in emojis which is fine, too. It’s all about that balance between space and your personality.

The biggest point is to do what works for you while displaying all the coolness you have to offer. Without sharing cute solo pics, a kickass bio, and your amazing personality, people won’t be able to see all the awesomeness that is you.

Why I Don’t Fawn Over My Husband

a photo of two people (one male one female) on their wedding day laughing with a cut out design on the front; "Why I Don't Fawn Over My Husband" in green and "chronic sex" in white underneath that (bottom-right)

On my personal site, Not Standing Still’s Disease, I call my husband ‘T.’ If you see it here, that’s why.

I haven’t talked about my marriage as much on here as I have elsewhere.

In September, we’ll have been together for a whole decade… which is a little daunting to think about. It feels like longer and shorter at the same time. Sometimes I forget if it was him or someone else I went to events with.

an off-center photo of two people kissing; the main person is wearing a white tee with red text on it and has shorter dark hair; the person on the right is wearing a green shirt with five o'clock shadow and glasses barely visible

When I met him, I was pretty sure we’d get married. After the last few relationships I had, I knew I wanted to disclose my chronic health issues early on. I’d been led on by a few guys who claimed they wanted a long-term relationship but only wanted sex.

I mean, I was 19 so sex was totally fine with me! Mostly I was tired of the deceiving part.

T and I got frozen custard and I mentioned that I had “this arthritis thing.” The way I phrased it really helped him to not catastrophize it. Then again, that’s when I didn’t have medical care and wasn’t diagnosed with most of my other health things.

I interviewed T in 2012 for NSSD. Check it out here. Ironically, that was also the first year I started talking about how arthritis crud affected our sex life.

It’s no secret that my health fun has been hard. It seems like it keeps getting worse, like now when I’m dealing with undiagnosed stuff. T’s still supportive and as helpful as ever. He still takes a lot in stride, holding back a lot of stuff he should probably tell me (like how my lack of vacuuming bugs him, etc.). Add to that how us both being on antidepressants has killed our mutual sex life and… well, you figure out quickly why I review sex toys.

Still, he’s my penguin.

two white people are seen hugging/leaning on each other from behind while sitting next to each other; the male on the left has a plaid shirt and brown hair; the female on the right has a white shirt and reddish hair; trees and foliage are in front of them

I see a lot of disabled or chronically ill people who overly praise their partners. That’s something I felt pushed to do in the beginning when I knew no other 20-year-old would put up with massaging my knees. Now that we’re on either side of thirty and both well-versed in social justice, I don’t feel that way.

Don’t get me wrong – he’s awesome. Our relationship is good. Things – including my illnesses – are stable and at least semi-predictable. We’ve gotten into a rhythm that works for us, have both gotten better at communication (after a number of stumbles on my part), and I know how to read him pretty well.

The thing is… praising him for sticking with me when I’m so fucking ill just perpetuates the myth that those of us with health crap are horrible choices for partners. I won’t fall into the ableism trap that is more-abled-partner worship.

Mountain photo with the following overlaid in white text: "Ableism: THE SYSTEMATIC OPPRESSION OF DISABLED AND CHRONICALLY ILL PEOPLE THROUGH LANGUAGE, ACTIONS, AND OTHER FACTORS" and "Chronic Sex" at the bottom-middle

People fall into this trap a lot. It’s easy to do, given messages we receive about our worth as people who are chronically ill or disabled. It’s assumed that our lives aren’t worth living or that we should be somehow pitied because of our existence. When we worship our partners for ‘putting up’ with us, it just reinforces those ideas.

The world is full of assholes who don’t see disabled people as people. They don’t think living our struggles with us is a worthy journey. That doesn’t mean we should sanctify the non-assholes, though, for being decent people. The reality is that we all have different needs in relationships, whether that’s related to a disability, past experiences, abuse, or a variety of other factors.

Like any person, disabled or not, we all have positive and negative attributes. When you’re a partner, though, you work together and can help to balance each other out.

Sure, there will be more time spent at doctor appointments or sitting in waiting rooms while I get MRI after MRI than there would be while dating an abled partner. There will be more frustrations with health, the medical system, and other forms of systematic oppression. Politics will start mattering to you even more, especially attacks on health care rights… which means you’ll be groggily going to work after staying up until 2 in the morning watching C-SPAN.

That said, I can provide a lot more empathy than the average partner. I’m pretty good at working around things I can’t do, whether that’s sexy or not. You’ll get to help go through pictures of me that are sexy for the sake of being sexy. You’ll always have someone who goes with you to doctor appointments and can advocate for you, there or calling to order pizza.

Just because some parts of our lives are harder because I’m disabled doesn’t mean I’m not a badass partner – or that I should feel crummy for being sick. Without that power difference, there’s really no need to put T on a pedestal. I can still appreciate the neck rubs and late night conversations without deifying T for ‘putting up’ with my illnesses.

Photo of my hand, featuring my silver band with a sapphire, interlocked via pinky with T’s

What a High Pain Day Taught Me About Hiding My Illnesses

TW: mentions of covert incest. This first appeared on our Medium publication page in November 2016.

I have always been someone who takes care of others.

It’s something that I have had to do.

Growing up in an abusive home, I had to take care of everyone — more emotionally than physically, but both for sure. I was the emotional partner for my mother, something called Covert Incest.

Because of that, I’ve always been incredibly independent. I have never wanted anyone else to feel like they had to take care of me. That goes double for my marriage, frankly.

Part of it is that I internalized the ableism that goes along with someone marrying a chronically ill/disabled person. I mean, after all, the expectation is that the ‘well’ one has to take care of the ‘sick’ one. Between that and my independence, I have never wanted my partner to feel like he had to take care of me.

He recently had LASIK and then got a cold a few weeks later, so I’ve been used to taking care of him. It wasn’t even a thing that I was worried about. He needed care and I was here. I mean, DUH.

Lately, maybe because of being more of a caregiver, I have been better about sharing and showing how I am doing and, in turn, my partner has been incredibly understanding and helpful.

Sunday morning, I woke up with intense stomach pain at 3 AM. It was clear that I needed to use the bathroom, so I did so. I spent a while in there, crying because the stomach pain was so bad. Frankly, I was wiping as quickly as I could because I was in so much pain that I thought I would puke, too.

It was not a proud moment.

By the time I was done, 20 minutes had elapsed. My stomach was still in an incredible amount of pain, so I went to the couch instead of my bed. I didn’t want to wake T up and, besides, I wasn’t sure sleep would visit me again.

It did, eventually.

When I woke up again, I was sure that I would be in a ton of pain. I wasn’t, which was perplexing, but I wasn’t going to question it, either.

And then, it happened.

A brick wall with an overlay that says ‘fuck this pain’ and a fancy curly doodle underneath

Over the course of a short time — something under five minutes — my pain went from not-an-issue to holy-fucking-shit-why.

Everything got heavy. I was barely able to hold up my phone. My muscles felt like what I assume they would feel like if I was able to run a marathon or do the Ironman.

I couldn’t hide it.

T asked if I was tired and I explained what was going on.

“What can I do? Ice packs? Biofreeze?”

Without hesitation, he jumped in and helped with whatever I thought might be helpful. A few minutes later, he had grabbed the Biofreeze and we slathered my arms. He snagged me an NSAID, too.

I don’t care if I can’t do much with my legs, but being unable to do much with my arms is a problem.

Within probably 30–45 minutes of the onset of the pain, I was asleep.

When I woke up, the initial pain was eased. My muscles were still in an incredible amount of pain, though.

T took me to our bedroom and asked what he could rub to help. He rubbed my hands, my feet, and my knees.

I apologized to him for all of this. I’m so good at stepping in and taking care of him, he said. He figures that I know how to best take care of myself, so it’s not a thing.

“But I’m always here to help when I can.”

In that moment, I realized a lot.

As vulnerable as so many applaud me for being, I still have a long way to go. I’m not nearly as vulnerable as I pretend I am.

I try to not let others see my illness fun firsthand. When I’m feeling bad and T’s at work, I talk on social media but rest. I write about what I’m going through, but in a safe space — at home, usually alone, and usually feeling slightly better than the time period I’m writing about.

This goes double for when I am sick at home. I cancel calls or FaceTime meetings with friends. I hide the extent of my illnesses from everyone — even T.

I have to stop pretending that I’m fighting against my illnesses on my own. The reality is so far from that — I am surrounded my love and support, and nowhere else is that true than at home.

Black and white photo of a bride and groom dancing

Why It’s Hard for Me to Communicate on my Illnesses and Pain

A few months ago, my husband and I had our first real fight after nearly a decade of being together. It had to do really with my lack of communication on how I’m doing. As much as I help others with communication skills within relationships, I’m not great at verbally communicating my own illness fun. It’s how I started writing about everything so, ya know… I just wrote this to him as a way to share more of my feels. This piece originally appeared on our Medium publication in February.

Hey love,

I know it’s hard for you to see what I’m going through. Invisible illnesses don’t make it easy for people to see all the ways they impact my life. I’ve gotten pretty good at coping with my illness fun, too, which doesn’t make it easy to tell when I’m struggling. Like a prey animal, I hide when my pain increases because it makes me vulnerable. I become an easy target for people to mock or harm.

Despite all this work I do with others on communication, I’m not great at it myself. I know that if I communicated what I’m dealing with better, it would improve both of our lives. It’s hard, though.

Just like showing my illness fun is vulnerable, talking about it is, too… except on steroids.

It’s easy and commonplace for me to notice my own pain or how my illnesses are being exacerbated on any given day. I have to do this in order to survive my day. Living is full of calculations for me —

Which extra medications do I take at which times? When do I use the ‘big gun’ medicines? Which of my non-medicinal relief methods can help, and in which order should I use them?

This has all become as natural to me as breathing.

Everything I do and experience is colored by pain and illness, even on the best days. When I talk about all of this, it reminds me how sick I am. It’s just a reminder of how differently you and I experience life. I know that my illnesses and pain doesn’t mean I’m lesser than you. Still, my depression and anxiety love to play on that.

It makes me scared, too. I get scared about how sick I am and how many more rough than easy days I have lately. I fear for what this means for my future — our future. My anxiety takes over and wonders:

Are my medications working? Do we have to switch again? I’m running out of options. How long will I live, then?

And then I wonder how long you’ll stay.

You say you won’t leave. Part of me knows you won’t. Still… there is so much evidence against relationships and illness. I can’t help but worry about this. How sick can I get before you decide it’s too much, even if you don’t tell me?

When I can’t cope as well with all this, it also makes me feel like a failure.

I’ve been sick since I was five. I’m so adept at hiding how painful existing is for me. Even physicians often don’t believe how pained I am because I smile and laugh.

The truth is, if I didn’t do those things, if I didn’t hide how I’m doing, I wouldn’t survive. If I had to talk about every single thing I endure and the pain I experience, it would remind me of how subpar all this makes me feel. It’s not easy on my mental health.

I know that my lack of communication sometimes makes living with me difficult. I promise that I will work on communicating better, even if we use code words for things. I will try to be more open about how I’m doing, what I can do, and what I need.

But I need something from you.

When I talk about my pain and illness state, please listen. Ask me questions. Hold my hand. Hold me. Recognize how hard I’m trying to break this habit of hiding.

It isn’t easy and it won’t happen overnight, but I’m trying.