A recent study found that reproductive health outcomes for folks with rheumatic diseases were affected by their conditions.
Conducted on a Finnish registry, they found that most rheumatic diseases caused higher risk for pre-eclampsia, preterm delivery, caesarean sections, and neonatal intensive care.
Note: this study seemed to be limited to cisgender individuals.
You can read the full study or a summary of it here.
The follow is a call for research participants to test a tool. I’m not involved, but it popped up on my radar, but I’m sharing here.
Brandeis University, the Cincinnati Children’s Hospital Medical Center, and others have worked together to develop a new tool – an Accessible Pregnancy Action Plan. This tool would help pregnant people with disabilities think about what they need during pregnancy, during birth, and after having their baby.
They are looking for people between 12 and 36 weeks along in their pregnancies who have disabilities / chronic illnesses and also use English or American Sign Language (ASL) to communicate.
Participants will work on their Action Plan with a peer facilitator, who is also a parent with a disability. These meetings will take place over Zoom. There will be between 2 and 4 meetings.
Most participants will complete the intervention in two sessions. They will be paid $50 per session. Participants who complete the program will also be compensated an additional $50.
Learn more about the study and take the screener here.
The following is an upcoming webinar from the ACR. Please note that this post has a major focus on cisgender folks and contains binary gendered language. It’s likely the webinar will as well.
Rheumatic diseases are lifelong conditions that affect over 54 million Americans, often during their childbearing years. Rheumatic diseases disproportionately impact women and certain rheumatic diseases are more prevalent in minority populations than they are in the general population.
On Tuesday, September 14, 2021, at 7 pm EDT, the American College of Rheumatology (ACR) and its Simple Tasks campaign will host a FREE webinar for patients, health care professionals, media and the general public on reproductive health and rheumatic disease. Attendees can expect discussion and resources from a panel of leading experts in rheumatology care, reproductive health, and parenting.
To register for the webinar, please visit rheum4you.org.
During the 90-minute webinar, experts will cover:
Panelists:
Webinar Moderator:
You can view the recording below: