Lubrication and Illness Fun It Can Help With

 

Please keep in mind that much of the research done regarding lubrication and sex or sexuality has been done in vagina-havers only. As a result, this post may be somewhat more gendered than we generally try to put up.

Lubrication is one of those magical things that can help solve or treat a multitude of things WHILE making sexual activities extra awesome. Let’s explore a little more in-depth some of the sexual issues that additional lubrication can help with.

One of the things that many of us experience is discomfort during sexual activity. There are many forms and severities of discomfort that can be caused by many different illnesses and even some medications. Not all of them get better with more lube, but many can. If you are on medications that may affect your sex drive or libido (such as SSRI antidepressants and some non-steroidal anti-inflammatory drugs or NSAIDs), adding in more lubrication – though foreplay or with a product – can completely change your sex life.

Sex when there is inflammation involved can also be helped by additional lubrication. If you have been through menopause, it’s incredibly common to deal with vaginal dryness. Sjögren’s syndrome can be a very common cause for those living with a rheumatic disease as well. Things like widespread chronic pain can even cause issues with lubrication itself due to the way it distracts us from pleasurable sensations.

Lube can also be incredibly helpful for people who may have mobility issues. To use an analogy, it’s easier to land a plane when the lights on the runway are on, no matter which direction you’re coming from.

plane landing on a runway with lights on at dusk

Okay, so on to the fun part about lube!

People who menstruate often remark on how awesome sex during menstruation can be. The biggest reason for this? All the extra lubrication! (Well, to be technical, the increased sensation leading to increased blood flow helps, too.)

Like I like to say, the more slippy the slide, the better the ride!

The beautiful thing about lubrication is that there are as many options out there as one can find. I personally suggest water-based lubricants, but you’ll have to wait until the next few posts following up this one to figure out which ones chronically amazing people like myself enjoy!

Note that there are certain medical conditions that present themselves in ways that affect our sex lives such as heart disease and stroke. Joan Price shared a story a few months ago in Milwaukee of a woman who lost her sex drive and then lost her partner only to have a medical emergency that could have been found early had her physician listened when she brought up rapidly decreased arousal. Please make sure to check in with your physician(s) about symptoms you may be having.

Chat Questions for October 6, 2016

It’s been a month since we had our chat thanks for conference season, so we are checking in tonight. Join us at 7 pm Eastern for our live chat on Twitter using the hashtag #chronicsex.

cs-10-6-16

Q1: Please introduce yourself in a way you’re comfortable sharing

Q2: It has been a long time, lovebugs. How are you doing?

Q3: How are your self-care and self-love efforts going?

Q4: How are your interpersonal/intimate relationships doing?

Q5: What types of things would you like to talk about in the future?

Q6: Who is your favorite celebrity crush and why?

 

 

Ten Chronically Amazing People to Look Up to When You’re Having a Rough Day

When we’re dealing with chronic illnesses and disabilities, we face days where our pain is high and our ability to cope is low. We have different ways to deal with life when this happens, but one of the best ways to do so is to connect with some other amazingly chronically ill people.

Here are some of my favorites in no specific order:

1. Mariah
Mariah is one of my favorite people ever. She is an amazing advocate working tirelessly to educate, raise awareness, and help mothers (and those trying to conceive or thinking about it) with chronic illnesses.

She writes at RheumatoidArthritis.Net and works with Joint Decisions in addition to helping out here at Chronic Sex.

2. Kenzie
What can I say about Kenzie?

She works so hard to thrive despite multiple illnesses. She is raw and vulnerable in a way that very few can be. She has the cutest sense of style, a passion for mental health, and the most giving and loving heart I have ever seen. She’s also pretty much the bestest friend ever.

She works with Joint Decisions as well.

3. Rheumatoid Arthritis Guy
Through RA Guy’s writing on his site, Creaky Joints, Joint Decisions, and his foundation, he both raises awareness and gives hope to others living with types of arthritis. He brings in a much-needed male voice to the patient advocacy community.

One of the reasons RA Guy is so admirable, though, is that he knows when to step back and do more self-care stuff. It’s amazing how someone can do so much and still be so focused on their own needs.

4. Leslie
Leslie works hard at her day job helping patients in the healthcare community and does it after-hours, too! She was one of the first bloggers with RA that I found. At the time, she was an amazing inspiration to me as she was in graduate school while dealing with her health issues – and I was incredibly concerned about even finishing college.

She writes for RheumatoidArthritis.Net, Health Central, Creaky Joints, and works with Joint Decisions.

5. Britt
While Britt (Hurt Blogger) has been a patient advocate and activist for years, she recently began working for the Arthritis National Research Foundation.

She also writes for Creaky Joints, Health Central, and works with Joint Decisions.

6. Abby
Abby is an amazing writer and health activist. She started a movement called Ask Me About My Uterus in order to raise awareness and openly discuss reproductive health, fertility, and more. It took forever for her endometriosis to be diagnosed. As a result, she has been incredibly frank and open about talking about these issues.She’s basically who I want to be when I grow up.You can find Abby on Medium, Romper, and on Facebook.

7. Jessica
Jessica works tirelessly to raise awareness of both physical and mental health issues. One of my favorite things about her is that Jessica focuses also on how to look good while ill, something that can definitely help to boost our self-worth. She’s also a great proponent of self-care.

You can find her at her site and Huffington Post.

8. Kristin

Kristin is not only a social media expert but an amazing health activist. She focuses heavily on patient engagement/experience and how to incorporate digital technologies in ways that improve the former.

She’s also basically my twin.

You can find her at her site and Tumblr.

9. Natalie
Natalie lives with a rare neurological disorder called Moebius Syndrome as well as additional illnesses. She writes about life, her amazingly adorable service dog Cassius, calling out ableism, and loving Hamilton.

Make sure to check out her site and her Facebook page.

10. Dawn
Dawn is the creator of the one-and-only Spoonie Chat. She’s also an amazing activist who focuses not only on chronic illness and disability rights but also on racism, socioeconomic disparities, and political issues.

Make sure to check out Spoonie Chat’s Facebook, Dawn’s Twitter, and Tumblr.

Who are some of your favorite chronically amazing peeps?

Dreaming of California

chronic-sex

Hi, lovebugs!

I’m excited to share that you can tune into two places coming up to hear about the upcoming For Grace conference that I am a part of – and to hear me talk a little more about my role in it!

On Sunday, September 11, at 4 pm Pacific Time, you can tune into KPFK to hear me and others on Access Unlimited. If you missed it, please check out their archives.

You can also tune into Change Is In the Air with Nicole Smith on 740 AM (KBRITE) at 8 PM Pacific Time on Monday, September 12. (I’m pretty sure that’s the date, though it may be the following Monday).

If you want to check out my presentation on Chronic Sex at Medicine X, sign up to live-stream it here. We haven’t been given a schedule for the day, yet, but I’m speaking on Thursday, September 15, at the Health Care Innovation (HCI) event.

You can also live-stream For Grace.

With all that said… Things will be a little quiet around here until the end of September between attending Medicine X at Stanford and For Grace in Los Angeles a week later. Because of the busy conference month and traveling, we won’t be having chat until the first week of October.

The bonus of putting chat off a little bit is that I have several episodes of the podcast recorded and just waiting for me to mix and edit, so I’ll be able to dedicate more time to that. A giveaway is also coming soon – stay tuned for details!

Feel free to utilize the #chronicsex tag on Twitter to share any meaningful stories or information you’d like others to see or tag us on whatever social media you use if you’d like things shared on a wider basis. Our social media pages will still be actively posting information, providing support, and sharing about traveling, though, so don’t be a stranger!

Not sure where to find us?
Facebook
Twitter
Instagram
Pinterest
Medium

You can also always reach me at kirsten@chronicsex.org, too.

PS we now have a Zazzle store! Please note that you have to set the content filter to moderate because, shocker, the word ‘sex’ can’t be a G-rated term. Whoops!

 

Chat Questions for August 25, 2016

Tonight, we’re talking about finding and using our voice with loved ones.

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Q1: Please introduce yourself in a way you’re comfortable sharing

Tonight, we’re going to talk about finding our voice in any relationship. Keep in mind that when I say ‘loved ones’ that can mean whatever it needs to for you – partners, family, friends, etc.

Q2: Do you feel like you can vocalize needs, wants, and concerns with loved ones?

Q3: Do you feel supported in regards to your health, your self-esteem, and the like by your loved ones?

Q4: When a loved one makes a judgmental or hurtful comment, are you able to stand up for yourself?

Q5: Do you have any tips for how to deal with judgmental comments or not let them get to you?

Q6: What is your favorite thing about the changing of seasons coming up?

Movies That Make Us Feel Good

Many things in our lives can have an effect on or influence how we regard ourselves – our relationships, societal expectations, and the media we consume.

Today, let’s explore some of our favorite feel-good movies.

Tasha says something about singing as a super villain is empowering.

Netty wants her own Baymax to take care of her, and I do, too!

 

Erik says it’s the perfect distraction from worries.

 

Kit says this is because of its innocent hopefulness.

Shaunia says this is due to how hilarious it is.

 

Chelsea says that she loves how the movie acknowledges that everyone has particular quirks, and that love and friendship are all about finding the people who fit your quirks. She also loves how the good deeds evolved.

 

Julie suggested this and I totally agree!

 

What are some of your favorite feel-good movies?

 

 

Chat Questions August 18, 2016

This week, we’re talking self-esteem:

Q1: Please introduce yourself in a way you’re comfortable sharing

Tonight, we’re going to talk about how our chronic illness or disability affect self-esteem

Q2: How do you feel about yourself currently? Do you have high, low, or middle-ish self-esteem?

Q3: How much do you feel like chronic illness and disability affect your self-esteem – little, meh, or DAMN?

Q4: Have you found any tips and tricks to improve self-esteem despite chronic illness & disability?

Q5: If you could talk to newly-diagnosed you, what would you say to help them with self-esteem?

Q6: What badass thing did you accomplish this week?

 

 

top 10

Top 10 Symptoms You May Have If You Have Pelvic Floor Dysfunction

Top 10 Symptoms You May Have If You Have Pelvic Floor Dysfunction
 
1. Inability to Orgasm

The frustration of this symptom knows no bounds. The desire is there. The arousal is there. All of the parts that make sex work for you are present, but you’re always at the edge of the cliff and can’t quite fall over. For me, that started nearly 10 years ago. I incorrectly attributed this dysfunction as stressing out over the fact that we moved in with my husband’s elderly father in a home with very thin walls. I thought this was why I couldn’t relax enough to enjoy our interludes. It progressed steadily to the point of being ready to make the fall off the orgasmic cliff peak, but it steadily progressed to pain – a cramp in the vicinity of my butt cheek, thigh or hip. Then I was done. Kaput. Finished. End Scene.

 
2. Pulling of Internal Scar Tissue

If you have ever had a child, a miscarriage, an abortion, have had a hysterectomy or any other surgical procedures on your lady parts, there is minimal evidence of these ordeals visible to the naked eye unless you’re looking for them. The internal damage can’t be seen but it can be felt and it shouldn’t. The scar tissue will occasionally pull. You’ll feel a twinge or a pinch internally when you stretch, or sneeze or maybe even laugh too long. This is not normal and should be mentioned to your health care provider. Preferably a physician whose sole practice revolves around issues of women’s health. Ask about your pelvic wall.

3. Painful Penetration During Intercourse

Your vagina and muscles of the pelvic wall have elasticity. It’s what allows a baby’s head to pass through the birth canal and enter the world. So there’s no reason a penis shouldn’t fit no matter its width or girth. If at any time entry becomes more difficult than you normally experience, the likely culprit is pelvic wall muscles that have the inability to relax. This is true for both vaginal and anal sex. With enough lubricant, insertion is possible. However, each successive encounter will become increasingly more difficult.

4. Radiating Pain

Pain that is all encompassing in your rump but travels. Up to your low back, down the back of the thigh but not past your knee. It can also travel sideways to involve the hip joint or close to the anus. Wiping after a bowel movement can be painful. This symptom is where a surplus of misdiagnosis occurs. It mimics any condition associated with sciatica and other pinched nerve syndromes.

5. Pain Bone Deep

I had the most difficult time trying to explain to my Orthopedist who misdiagnosed my condition as Sciatica that the pain in my ass hurt so bad it went bone deep. Discussing this with my Physiatrist, she says this is a common complaint. The bones connected to your pelvic wall hurt beyond my ability to properly describe without using language more commonly suited for sailor’s. It’s pretty much constant, and at my worst I went 4 days without a wink of shut-eye. Walking, sitting, on your stomach, kneeling, or flat on your back, there is no relief. My husband would boil water to pour in the bathtub so I could sit in water as hot as I could stand it. The relief lasted for only as long as I was in the tub. The medications I was taking didn’t provide any relief at all.

 picture of a model of the muscles of the pelvic wall - minus bladder and reproductive organs - After Darkk
A picture of a model of the muscles of the pelvic wall, sans bladder and reproductive organs
6. Unexplained Lower Back Pain

Your back hurts. For no apparent reason, and not every day, you have low back pain. It really is surprising how many other muscles are attached to the pelvic floor. The pain could be from full kidneys because you can’t void or from full bowels because you can’t eliminate. However, your unexplained low back pain could be an early warning sign if you don’t have any of the other symptoms. If you have other symptoms, make sure you communicate effectively with your health care provider.

7. Inability to Void Your Bladder

Overactive bladder urge is a common symptom with pelvic floor dysfunction. You feel as if you need to go frequently, but no matter how hard you try, you get no relief. No amount of straining will provide relief. Some women have such severe pelvic wall dysfunction they have to use a catheter at home. Never, under any circumstances, should you ever need to use your abdominal muscles to push urine from your bladder. If this is a something you have to do in order to urinate, mention this problem to a health care provider.

 
8. Inability to Eliminate Your Bowels

Constipation takes on a whole new meaning. There’s not enough Metamucil in the world to provide aid. Your flat abs start looking like food belly. Or in your second trimester of pregnancy. This can cause secondary health issues if the condition is prolonged. The health experts say a person should have at least one good bowel movement a day. As far as I’m concerned, there’s nothing good about a bowel movement. Straining to have a bowel movement isn’t uncommon but coming up rabbit pellets is an indication something is wrong.

 
9. Weight Gain and Fluid Retention

Stepping on a scale and seeing almost 30 pounds extra in a 90-day window can be quite shocking. Both for the person standing on the scale and the doctor reviewing your health records. The unusual part, and yet another warning sign, is that your sizes stay the same. You won’t need bigger britches or a bigger bra. You may need a bigger ring or a more comfortable shoe. It’s water weight from the inability to void your bladder. My weight will fluctuate nearly 15 pounds either way on any given day depending on my ability to use the bathroom.

 
10. Painful Pap Smears

One of the things I’ve learned through all of this which left me hanging my jaw open in speechlessness was this: Did you know there is absolutely no medical necessary reason under the sun for any physician to perform a Pap smear using a Speculum? They can be done without them. Since the birth of my first child, I have absolutely detested going to for a Pap smear because they hurt. The Qtip to gather tissue didn’t bother me at all. It was the insertion of the speculum, then the spreading of the medical device. My DPT teaches classes on this noninvasive technique. If pain during a Pap smear is something you experience, there is no need. Make a few telephone calls and find a physician in your area who can do them without using a speculum.

I would like to thank Kirsten for allowing me to be a guest on her blog. My hope is the readers have said no to all of these numbered symptoms. If you answered yes to even one of them, please consider an evaluation by a pelvic health expert.

Head on over to my homepage and subscribe to my blog for great posts on pelvic wall dysfunction, sexual wellness, relationships, personal pleasure device reviews, and author recommendations. Subscribe for updates if you’d like. You can also follow me on Twitter @afterrdarkk.

Broken, After Dark

Broken is the pseudonym for the author of blog posts on AfterrDarkk.com who can trace the beginning of her sexual dysfunction to almost 10 years ago. After 8 years of self-advocacy and numerous doctors, she was able to get to a physician who was willing to listen to her complaints and actually understand them. Her husband also suffers from a rare neurological disorder called S.U.N.C.T. so she’s no stranger to problems that occur in the bedroom through no fault of your own.

Featured photo via Sam Churchill/Flickr (via Wylio.com)